Advocacy Committee Meeting
The National MPS Society’s Monthly Advocacy Group is a welcoming space for individuals and families impacted by MPS and related diseases who want to stay informed, share their voices, and help drive meaningful change.
8 イベント found.
イベント
-
-
-
The Storytelling Series: Crafting Your Story
This four-part webinar series is designed to support individuals and families in the rare disease community as they explore the power of storytelling as a tool for connection, impact, and change.
-
Hola MPS Committee Meeting
Hola MPS is a welcoming space focused on supporting and connecting individuals and families impacted by MPS and ML, while strengthening Spanish-language resources and culturally relevant support across our community. […]
-
The Storytelling Series: Telling Your Story with Purpose
This four-part webinar series is designed to support individuals and families in the rare disease community as they explore the power of storytelling as a tool for connection, impact, and change.
-
-
The Storytelling Series: Bringing it All Together
This four-part webinar series is designed to support individuals and families in the rare disease community as they explore the power of storytelling as a tool for connection, impact, and change.
-
-
Raleigh Run for Rare 5K and 1-Mile Walk
Lake Crabtree Park 1400 Aviation Pkwy Morrisville NC United StatesFundraiserJoin us for a timed 5K run & walk event, beginning at 9 AM on Saturday, March 28, 2026.
-
-
Napa Race for a Cure 5K and 1-Mile Walk
Kennedy Park 2295 Streblow Dr Napa CA United StatesFundraiserJoin us for a timed 5K run & walk event, beginning at 9 AM on Sunday, April 26, 2026.
-
-
40th Annual Family & Scientific Conference
The National MPS Society invites you to attend its 40th Annual Family & Scientific Conference in Cincinnati, OH, on July 31-August 2, 2026.