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  • About MPS

    MPS Types

    • MPS I (Hurler, Hurler-Scheie, Scheie Syndrome)
    • MPS II (Hunter Syndrome)
    • MPS III (Sanfilippo Syndrome)
    • MPS IV (Morquio Syndrome)
    • MPS VI (Maroteaux-Lamy Syndrome)
    • MPS VII (Sly Syndrome)
    • ML II and ML III (I-Cell Disease and Pseudo-Hurler Polydystrophy)

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6 etkinlikler found.

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Bugün
  • Aralık 2025

  • Cum 12
    ديسمبر 12 @ 8:00 م - 9:00 م

    Adult Resource Committee (ARC) Virtual Winter Social

    Virtual Event

    Join the Adult Resource Committee for a virtual winter social on December 12, 2025, at 9 PM ET.

    Free
  • Sal 16
    ديسمبر 16 @ 8:00 م - 9:00 م

    Pathways Resource Group

    Virtual Event

    A diagnosis of MPS often brings unexpected financial challenges. To help families navigate available support, we’re grateful to welcome Stephanie Marshall from The Assistance Fund (TAF) to our next Pathways group. TAF is a patient assistance organization that supports individuals and families living with MPS I, II, and VII, and all community members are invited to attend. […]

  • Çar 17
    ديسمبر 17 @ 6:00 م - 7:00 م

    Advocacy Meeting

    Virtual Event

    Join the National MPS Society for its December Advocacy meeting!

    Free
  • Mart 2026

  • Cts 28
    2025 Raleigh Run for the Cure
    مارس 28, 2026 @ 9:30 ص - 1:00 م

    Raleigh Run for Rare 5K and 1-Mile Walk

    Lake Crabtree Park 1400 Aviation Pkwy, Morrisville, NC, United States
    Fundraiser

    Join us for a timed 5K run & walk event, beginning at 9 AM on Saturday, March 28, 2026.

  • Nisan 2026

  • Paz 26
    أبريل 26, 2026 @ 7:30 ص - 1:00 م

    Napa Race for a Cure 5K and 1-Mile Walk

    Kennedy Park 2295 Streblow Dr, Napa, CA, United States
    Fundraiser

    Join us for a timed 5K run & walk event, beginning at 9 AM on Sunday, April 26, 2026.

  • Temmuz 2026

  • Per 30
    يوليو 30, 2026 - أغسطس 1, 2026

    40th Annual Family & Scientific Conference

    Fundraiser

    The National MPS Society invites you to attend its 40th Annual Family & Scientific Conference in Cincinnati, OH, on July 31-August 2, 2026.

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Dedicated to guiding and empowering those impacted by MPS and ML, every step of the way for more than 50 years.

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