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오늘
  • 12월 2025

  • 금 12
    12月 12 @ 8:00 pm - 9:00 pm

    Adult Resource Committee (ARC) Virtual Winter Social

    Virtual Event

    Join the Adult Resource Committee for a virtual winter social on December 12, 2025, at 9 PM ET.

    無料
  • 화 16
    12月 16 @ 8:00 pm - 9:00 pm

    Pathways Resource Group

    Virtual Event

    A diagnosis of MPS often brings unexpected financial challenges. To help families navigate available support, we’re grateful to welcome Stephanie Marshall from The Assistance Fund (TAF) to our next Pathways group. TAF is a patient assistance organization that supports individuals and families living with MPS I, II, and VII, and all community members are invited to attend. […]

  • 수 17
    12月 17 @ 6:00 pm - 7:00 pm

    Advocacy Meeting

    Virtual Event

    Join the National MPS Society for its December Advocacy meeting!

    無料
  • 3월 2026

  • 토 28
    2025 Raleigh Run for the Cure
    3月 28, 2026 @ 9:30 am - 1:00 pm

    Raleigh Run for Rare 5K and 1-Mile Walk

    Lake Crabtree Park 1400 Aviation Pkwy, Morrisville, NC, United States
    Fundraiser

    Join us for a timed 5K run & walk event, beginning at 9 AM on Saturday, March 28, 2026.

  • 4월 2026

  • 일 26
    4月 26, 2026 @ 7:30 am - 1:00 pm

    Napa Race for a Cure 5K and 1-Mile Walk

    Kennedy Park 2295 Streblow Dr, Napa, CA, United States
    Fundraiser

    Join us for a timed 5K run & walk event, beginning at 9 AM on Sunday, April 26, 2026.

  • 7월 2026

  • 목 30
    7月 30, 2026 - 8月 1, 2026

    40th Annual Family & Scientific Conference

    Fundraiser

    The National MPS Society invites you to attend its 40th Annual Family & Scientific Conference in Cincinnati, OH, on July 31-August 2, 2026.

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Dedicated to guiding and empowering those impacted by MPS and ML, every step of the way for more than 50 years.

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