Adult Resource Committee (ARC) Virtual Winter Social
Virtual Event
Join the Adult Resource Committee for a virtual winter social on December 12, 2025, at 9 PM ET.
無料
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Pathways Resource Group
Virtual EventA diagnosis of MPS often brings unexpected financial challenges. To help families navigate available support, we’re grateful to welcome Stephanie Marshall from The Assistance Fund (TAF) to our next Pathways group. TAF is a patient assistance organization that supports individuals and families living with MPS I, II, and VII, and all community members are invited to attend. […]
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Raleigh Run for Rare 5K and 1-Mile Walk
Lake Crabtree Park 1400 Aviation Pkwy Morrisville NC United StatesFundraiserJoin us for a timed 5K run & walk event, beginning at 9 AM on Saturday, March 28, 2026.
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Napa Race for a Cure 5K and 1-Mile Walk
Kennedy Park 2295 Streblow Dr Napa CA United StatesFundraiserJoin us for a timed 5K run & walk event, beginning at 9 AM on Sunday, April 26, 2026.
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40th Annual Family & Scientific Conference
FundraiserThe National MPS Society invites you to attend its 40th Annual Family & Scientific Conference in Cincinnati, OH, on July 31-August 2, 2026.