Pathways Program: Support for Families Newly Diagnosed with MPS or ML
You're not alone. Begin your journey with guidance, resources, and support.
What Is the Pathways Program?
The Pathways Program is a free resource for families who are newly diagnosed with MPS or ML. It provides helpful information, personal support, and practical tools to guide you through the first steps of your journey. You’ll find syndrome-specific details, questions to ask your care team, and ways to connect with others in the community — all created to help you feel informed and supported.
Here When You Need Us Most
From diagnosis and treatment to everyday challenges, the National MPS Society offers support programs tailored to meet your family’s needs. Services include:
One-on-one support from a trained Society professional
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Financial assistance
programs
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Syndrome-specific information and resources
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Opportunities to connect with other families
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Membership in the MPS Society to access additional benefits
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You’re Joining a Community
Thousands of families have faced the moment you’re in now — and they’re here to walk beside you. Through Courage Pages and family stories, you can read about others’ experiences and see how they’ve found hope, strength, and support along the way.
Getting Started: Resources for Newly Diagnosed Families
Reach Out for Support
Connect with the National MPS Society’s Pathways Program for personalized guidance during your first year after diagnosis.
Learn About Your Syndrome
Get detailed information on MPS and ML syndromes, current treatments, and clinical trials.
Download Helpful Materials
Visit the MPS Library to access digital syndrome booklets, fact sheets, and educational resources.
Connect with Other Families
Want to meet families facing similar challenges? We can help you connect with others who share your syndrome journey.
会員になる
Join the National MPS Society — membership is free for families, patients, and friends.
Attend Local Events
Find an MPS event or fundraiser near you and meet others in the community.
Learn More About MPS
Understanding MPS is the first step toward finding answers and making empowered decisions. Explore in-depth information about the different types, symptoms, and treatment options.