Courage Pages. Every Story Matters.
Meet some of the incredible families who inspire our mission every day.
What Is a Courage Page?
Courage pages are a special space for families in the MPS & ML community to share their unique stories and honor their journeys. Each page provides an opportunity to raise awareness and fundraise for the programs and initiatives that mean the most to them—whether that’s advancing research, supporting families, or driving advocacy. By creating a Courage page, families help inspire hope, connection, and progress for everyone affected by MPS and ML.
Select a family’s name below to directly support their Courage Page, or choose to give to the Society as a whole.
Wall of Courage
Create Your Own Courage Page
Share your journey in your own words and your own time — with photos, videos, poems, and updates that bring your experience to life. Your story can help others understand the realities of rare disease while shining a light for families on a similar path.
To create a Courage page or update an existing one, please contact Amber Adams at amber@mpssociety.org.
At the heart of each page is a family’s story — and a ripple of awareness, action, and inspiration.
Families have raised over $100,000 through Courage Pages, with funds directed toward syndrome-specific research, family support, or legislative efforts — as chosen by the family.
Share Your Story of Courage
Real stories create real connection. Inspire others in the MPS and ML community by sharing your journey or that of a loved one.