Resources for Every Step of the Journey
Access educational resources, syndrome booklets, and materials for families, caregivers, and healthcare professionals.
Syndrome-Specific Booklets & Management Guides
MPS V
- Formerly Scheie Syndrome
- MPS VII Booklet – Sly Syndrome
- Español: MPS VII – Síndrome de Sly
- ML Booklet – Mucolipidosis II and III
- Español: ML II/III – Síndrome de Celula-I y Pseudo-Polidistrofia de Hurler
Learn About Our Industry Partners
Visit the following links for information from major pharmaceutical companies, medical and health care organizations involved in the development and production of therapies for MPS and ML. These links are provided as an informational service only.
Need Support? We’re Here for You
Living with an MPS diagnosis can feel overwhelming, but you’re not alone. Our Family Support Programs offer guidance, resources, and a caring community to help you every step of the way.