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Living With Courage Blog

The Living With Courage blog is a space to honor and share the powerful voices of individuals and families navigating life with MPS and ML. Each story is a testament to resilience, hope, and the strength of our community. Whether you're living with a diagnosis or supporting a loved one, your journey matters—and it can inspire others.

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We invite you to submit your experience for a chance to be featured on the blog. Together, we raise awareness, build connection, and continue living with courage.

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Jenny’s Story: Life with ML

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Rarest in the Family: Juliette (MPS III)

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A Long Road: Kelley’s Journey to an MPS I Diagnosis

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Small but Mighty: Kashton (MPS II)

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Thriving with Gene Therapy: Abe’s Story

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The Princess of the Family: Sebin’s Story

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Waiting for a Diagnosis for More Than 30 Years: Dana’s Story

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A Lifetime of Love in 2.5 Years: Blakely Mae’s Enduring Legacy

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The Invaluable Gift of Hope: Raelin’s Story

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The Wain Family’s Journey

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Racing Against Time: the Torbert Family’s Story

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A Mother’s Relentless Fight: Jacob’s Journey with MPS IIIB

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En tant que membre de la National MPS Society, vous faites partie d'une communauté compatissante, informée et responsabilisée. L'adhésion est toujours gratuite pour les personnes atteintes de MPS ou de ML, leurs familles, leurs soignants et leurs amis.

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