Payton was diagnosed with MPS III-A Sanfilippo Syndrome right before she turned 6 years old. We had a normal pregnancy and the first 2.5 – 3 years of life her milestones were being met and she was perfectly healthy. A shift in her behaviors, health issues, and unexpected delays in speech and cognitive milestones brought us to having her screened for Autism. She was diagnosed with Autism and ADHD and we powered forward to educate ourselves and get her the best services to motivate her and to continue thriving. After a couple of years of going through the challenges of the new diagnoses, we began noticing other issues with her overall health. After endless doctor and hospital visits, we were encouraged to get genetic testing completed. When we were given the news of her MPS III-A diagnosis, our whole world shattered. It was a difficult time for our family as we navigated through what the diagnosis meant and what we were headed towards. The first year felt like a million years worth of establishing proper care, connecting with services and benefits, appointments, procedures, scans, sleepless nights, anxiety, and fear. We started to understand what it meant for both grief (for the struggles/reality) and joy (the wins!) to coexist. And all the while Payton was as brave and strong as ever. She became the epitome of perseverance and strength, not just for herself, but for all of us. While we are still in the thick of it all and know what's ahead, our goal remains solid in providing the best quality of life for Payton.