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About the National MPS Society

Empowering families, funding groundbreaking research, and driving awareness to create a brighter future for those affected by MPS and ML.

C.U.R.E.

A brighter future for those with MPS and ML starts here.

Cuidado

Supporting Families Every Step of the Way

We provide essential resources, financial assistance, and emotional support for families affected by MPS and ML. From scholarships and medical travel aid to comprehensive resource guides, we help navigate the journey ahead. Our monthly email newsletter, eCourage, shares research updates, advocacy efforts, and community stories. Each year, our national conference brings families together to connect, learn, and find support.

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Stronger Together

We unite families, caregivers, and individuals affected by MPS and ML to create a supportive and empowered community. Through local gatherings, national conferences, and online networks, we foster connections that provide comfort, shared experiences, and advocacy opportunities. Together, we amplify our voices to drive awareness, advance research, and support one another on this journey.

Investigación

Driving Research for a Cure

We fund groundbreaking research to advance treatments and, hopefully one day, find a cure for MPS and ML. By hosting and participating in scientific conferences, we foster collaboration among researchers. Partnering with other lysosomal storage disease organizations, we unite efforts to accelerate progress and improve lives.

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Educating and Advocating for Awareness

We raise awareness by hosting public events, publishing educational materials, and providing up-to-date resources on research and advocacy. Through strong partnerships with government agencies and congressional offices, we push for policy improvements that benefit the MPS and ML community. Engaging in global symposiums and collaborating with international organizations, we ensure that MPS education and advocacy extend worldwide.

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Our Impact

Member households served annually

2,800+

Million in research grants, conferences, medical durable goods, patient education, scholarships, legislative advocacy, global collaborations, and more since 2000

$25.9

Charity Navigator Rating

4-star

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Your gift brings hope, support, and critical resources to families affected by MPS and related diseases. Every dollar moves us closer to better treatments and a cure.

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