Advocacy Committee Meeting

The National MPS Society’s Monthly Advocacy Group is a welcoming space for individuals and families impacted by MPS and related diseases who want to stay informed, share their voices, and help drive meaningful change. Each month, participants come together to learn about current policy issues, legislative opportunities, and advocacy priorities affecting the rare disease community—while also gaining practical tools to advocate at the local, state, and national levels.

This group is open to the public: whether you are new to advocacy or have years of experience, this group offers connection, guidance, and empowerment. Join us to hear updates from the Society’s advocacy team, connect with others who understand your journey, and discover how your lived experience can influence policy and improve access to care, research, and treatments. Together, our voices are stronger—and your voice matters.

Email info@mpssociety.org to learn how to join us!