The National MPS Society exists to cure, support, and advocate for mucopolysaccharidosis (MPS) and mucolipidosis (ML).

Thank you for your support and connection with this community. We are honored to participate in the 17th Annual WORLDSymposium. Please contact us for more information or resources.

Click to view or download our resource packet for conference attendees

Science and Research

Research is at the forefront of our mission, with over $12 million awarded in grants for MPS/ML and $40 million in NIH-funded research. Our research grant program opens February 15, 2021 and will accept applications for one or two-year MPS and ML grants for $50K – $100K each, in bench, investigative, and translational categories.

Family Support and Pathways Programs

Through Family Support scholarships and grant programs, the Society enables members to access family conferences and obtain educational advancement, receive durable medical equipment and reimbursement for medical travel, among other resources. Services for families and individuals continue throughout the lifetime and into bereavement support.

The Pathways program offers face-to-face connection with direct social work support throughout the first year of diagnosis.

Fundraising and Events

Fundraising is critical to further our mission. We invite you join us for our virtual events this year:

March 27: Virtual Raleigh Run for Rare
May 2: Virtual Napa Run for Rare
May 15: MPS Awareness Day Virtual Gala
June 12: Million Dollar Bike Ride
June 19 – 20, 26 – 27: Virtual National MPS Society Family Conference
October 29 – November 6: The Big Bake for MPS and ML
November 30: Giving Tuesday