Keaton Schanely

MPSIIIB has no treatment or cure, and the path of progression is different for every child affected with the syndrome, which still does not sit well for this Type A […]

The Holland Family

Our three children, Spencer, Maddie, and Laynie, were diagnosed with mucopolysaccharidosis type I (MPS I) at ages four, three, and one. When they were diagnosed back in 1994, we learned […]

Matthew Lau

12/20/25 UPDATE: The fundraiser goals for BOTH Phase I (Dec 1) and Phase II (early 2026) of the EAP have been met!! You helped our family raise over $831,000 since fundraising […]

Poppy & Oliver Kempf

For the first time in history, a therapy for Sanfilippo Syndrome Type B is within reach. In 2025, families fighting Sanfilippo Syndrome Type B (MPS IIIB) raised $5.5M+ toward an […]

Giving Tuesday

What is Giving Tuesday? Giving Tuesday is a global day of generosity that inspires people everywhere to support the causes they care about most. Celebrated on the Tuesday after Thanksgiving […]

Carissah the Christmas Wrapper

The holidays are stressful enough, right? Enter Carissah, your festive superhero here to save the day (and your sanity)! She’s combining her ultimate love of Christmas with a brilliant way […]

Maci Grace Eickman

Maci was a happy, funny 14 month old when we received the devastating news that she had MPS-I. Within 3 months of diagnosis she had her bone marrow transplant. She […]

Caylin Raines

Caylin was our social little butterfly and child that could do no wrong. She sure gave us a run for our money on the crazy things she did in life, […]

Chase Veliz

Chase was the strongest force of love in our lives. He was our everything. All of us continue to feel his presence occasionally and out of the blue. My daughter […]

Edie Burke

In her short lifetime, Edie gave so much to many…. https://mountainx.com/arts/art-news/edgy_mama_life_of_a_child/