| County | Organization Name | Contact |
|---|---|---|
| Australia | Lysosomal Diseases Australia | john.hopwood@adelaide.edu.au |
| France | Vaincre les Maladies Lysosomales | Phone: 01 69 75 40 30 |
| New Zealand | Lysosomal Diseases New Zealand | john.forman@xtra.co.nz |
| Norway | Lysosomal Diseases Norway | Phone: 64 85 60 00 info@frambu.no |
| Romania | Fundatia Romana Pentru Bolile Lizozomale | gaucher.romania@yahoo.com |
| United States | International Society for Mannosidosis & Related Diseases | info@mannosidosis.org |
| United States | National Tay-Sachs & Allied Diseases Association | info@ntsad.org |
