Families often face difficult and painful losses, and we want to help. If you have a death in your family or need to reach out, please contact us.
The National MPS Society seeks to provide support to all families throughout their MPS and ML journey. As part of this support, the Bereavement Expense Program helps to provide financial assistance through a one-time grant for up for final expenses.
The Bereavement Expense Program provides the grant directly to a funeral home or other professional service provider associated with final expenses, within 90 days following the death of an individual with MPS or ML. Please contact Leslie Urdaneta, Director of Family Support and Communication for more information.
Bereavement Expense Program Guidelines
Each year, we publish Angels Among Us to remember those who have passed away. Please visit this link to learn how to submit (submissions are due by mail with annual membership renewal or through an online form by March 1 of each year) or to view the current edition of this publication.
We hope you find these links to information helpful in your journey. If you have resources to add, please contact us. Disclaimer: the National MPS Society offers these suggested sites for additional information; however, inclusion in this list does not constitute any real or implied endorsement of their content by the Society.
Bereaved Parents of the USA
Courageous Parents Network: CPN