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Links and Resources

MPS and ML Library

Our library includes details on each MPS and ML syndrome type, as well as fact sheets that cover a broad range of the MPS experience.

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1 Feb, 2023

MPS Society 5K Run in Napa, CA

On April 30th, in Napa, CA, we will host the MPS Napa Race for a Cure. Come out and enjoy a family day...

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16 Feb, 2022

Raleigh Run for Rare

Join us at Dorothea Dix Park on March 26, 2022 for the Raleigh Run for Rare. For more information, click...

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27 Dec, 2021

Winter Courage

Our 2021 Winter edition of Courage is now available electronically to view or download! Click to read...

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27 Jul, 2021

Science Showcased at 35th Annual Family Conference

National MPS Society CSO Dr. Matthew Ellinwood participates in a question and answer session with Dr....

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27 Jul, 2021

Physical Therapy for Children With MPS and ML

Stacey C. Dusing, PT, MSAngela Rosenberg, DrPH, PTSadye Paez, PT, MSWendy Westphal, MPTReviewed and updated...

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14 Sep, 2020

Mucolipidosis Collaborative Research Network (MCRN)

Accelerating a Treatment for GNTAB-Related Disorders Richard Steet, Ph.D.Jennifer Klein, MS One...

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