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Links and Resources

MPS and ML Library

Our library includes details on each MPS and ML syndrome type, as well as fact sheets that cover a broad range of the MPS experience.

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22 Sep, 2022

Newborn Screening Article Release

Matthew Ellinwood, Chief Scientific Officer, authored a new publication published in the American Journal of...

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3 Aug, 2022

DHHS adds MPS II to the RUSP for Newborn Screening in the United States

Click here to download full text.Durham, NC August 3, 2022 - The National MPS Society announces that...

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11 Feb, 2022

Advisory Committee on Heritable Disorders in Newborns and Children Votes to Approve MPS II for Recommended Uniform Screening Panel

Download Full Text Durham, NC February 11, 2022 - The National MPS Society announces that the Advisory...

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27 Jul, 2021

Physical Therapy for Children With MPS and ML

Stacey C. Dusing, PT, MSAngela Rosenberg, DrPH, PTSadye Paez, PT, MSWendy Westphal, MPTReviewed and updated...

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3 Jun, 2020

Your Donation, Your Decision

Terri Klein, NPGC The National MPS Society is a 501(c)3 public charity nonprofit organization dedicated...

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3 Jun, 2020

Writing a Letter of Support

Amy Fisher, MSTerri Klein, NPGC Individuals with MPS and ML and their families often need to call on...

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