Legislative Toolkit

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Support Toolkit

Summer 2015 Webinar:

Making Noise about 21st Century Cures During August Congressional Recess:

The Legislative Advocacy Committee of the National MPS Society presents information about the 21st Century Cures Act — an exciting, high priority bill that has bi-partisan support in Congress — and learn how YOU can help get it passed by visiting with your members of Congress in August.

Click here to view the presentation.


How-to Webinar: Guide to Telling Your Story

Whatever the situation and audience, your personal story is incredibly powerful. It’s essential that we learn how to tell our stories effectively. Maybe you’re talking to a lawmaker to urge them to fund MPS or related disease research; maybe you’re talking to a physician or a teacher about your child’s needs; or maybe you’re sharing your story with the public to raise awareness about MPS and related diseases. Do you want tools and easy strategies for telling your story in an effective way? Listen to the pre-recorded webinar below. The file may take a moment to download.

Guide to telling your personal story effectively (webinar)

Click here to download the PowerPoint presentation.

Click here to download the Work Sheet.


How-to Webinar: Guide to Social MediaAdvocacy

Are you interested in using social media to advocate to legislators about MPS and related diseases but aren’t sure how? Listen to the pre-recorded webinar below for tools and tips. The file may take a moment to download.

Guide to Social Media Advocacy (webinar)

Click here to download the PowerPoint presentation.


How to Webinar: Guide to In-district Legislative Visits

Are you interested in meeting with your legislators to discuss the National MPS Society but aren’t sure how? Listen to the pre-recorded webinar below for tools and tips. The file may take a moment to download.

Guide to In-District Legislative Visits (webinar)

Click here to download the PowerPoint presentation.


Contact Your Representatives:

Click here to contact your representatives.


Additional Resources:

How to Find Your Members of Congress (pdf)

Contacting Your Members of Congress to Schedule a Meeting (pdf)

Strategies for Finding Information About Your Lawmaker (pdf)

Legislative Meeting Agenda (pdf)

Talking Points for Meetings with Lawmakers (pdf)

Strategies for Building a Relationship with Your Lawmaker (pdf)

How to Tell Your Personal Story (pdf)

Fact Sheets:

Requested Report Language for Fiscal Year 2014 Appropriations (pdf)

Legislative Meeting Feedback Form (pdf)

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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