Whether it’s financial assistance during a hard time, a special treat for a family member, or to help make educational dreams come true, we support MPS and ML families across the nation.

Please use our online application system for all Family Support Program Applications. If you are a first time user, please complete the registration process. Once you are logged in, you will be directed to the applications. If you have already registered, simply log in on the left hand side of the page.

If you are not able to complete the application using our online application system, please call 919-806-0101.

Family support programs are for eligible members of the National MPS Society. Membership should be active for at least 3 months prior to applying (newly diagnosed families are exempt from 3 month waiting period).

Conference Scholarship Program

The National MPS Society is pleased to offer scholarships to the 34th Annual Family Conference in Nashville, Tennessee. This conference has been postponed until 2021.

Scholarships will be awarded to a parent or legal guardian of a child with MPS or ML. Scholarships will help enable families to attend the conference who are otherwise not financially able to do so. Preference is given to families attending a conference for the first time.

Conference scholarship applications will open on January 1, 2021. Applicants for the postponed 2020 conference will need to reapply at this time.


Continuing Education Scholarship Program

Post secondary education scholarships are available for individuals with MPS and ML, their siblings (under age 30), their children, and their parents. Scholarships are awarded in increments of $1,000 for full-time students, $500 for part-time students, and the Jeffrey Bardsley scholarship awards $5,000.

Scholarship applications are available in January. The application deadline is March 8, 2020. Applications are only accepted using our online application system. Please review the current guidelines to ensure eligibility.

Guidelines for Jeffrey Bardsley Scholarship (2020)

Guidelines for Individuals with MPS and ML (2020)

Guidelines for Siblings, Parents, and Children of Individuals with MPS and ML (2020)


Bereavement Expense Program

The National MPS Society seeks to provide support to all families throughout their MPS and ML journey. As part of this support, the Bereavement Expense Program helps to provide financial assistance through a one-time grant for final expenses.

The Bereavement Expense Program provides the grant directly to a funeral home or other professional service provider associated with final expenses, within 90 days following the death of an individual with MPS or ML. Please contact Leslie Urdaneta, Family Program Coordinator for more information. Applications are only accepted using our online application system and prior approval.

2020 Bereavement Expense Program Guidelines


Extraordinary Experiences

A program designed especially for individuals diagnosed with MPS and ML who are 13 years of age and older. Grants of up to $1000 are available to help individuals have their very own life-enriching extraordinary experience. Please review the 2020 guidelines to ensure eligibility.

2020 Extraordinary Experiences Guidelines

Click here to apply


Family Assistance Program

Grants for special equipment or medical aids may be requested up to a maximum of $3,000 for parents of an individual with MPS or ML or an adult with MPS or ML per 12-month period, dependent on available funds and committee approval.

2020 Family Assistance Program Guidelines

Click here to apply


Journey Assistance Program

Assistance grants to help purchase exceptional items needed during the MPS journey. Items requested shall be for exceptional items that have the potential to make your life easier or more enjoyable. These exceptional items typically have limited funding options, and are often out-of-pocket expenses for families. Journey grants will be awarded for 40 percent of the total purchase price and will not exceed $500 per individual with MPS or ML.

2020 Journey Guidelines

Click here to apply.


Medical Travel Assistance Program

Families may need to travel long distances to consult with medical professionals who are knowledgeable about MPS and ML. The Medical Travel Assistance Program (MTAP) helps fund out-of-town travel costs for non-recurring medical appointments that are 200 or more miles away from their home. MTAP may reimburse up to $500 in transportation and hotel costs per individual with MPS or ML per 12 month period.

2020 MTAP Guidelines

Click here to apply


Regional Social Events

We encourage families to arrange social gatherings for other families in their region. The National MPS Society offers grants to assist with funding of your event.

2020 Regional Event Grant Guidelines

Click here to apply.

 

 

 

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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