Family Support Programs

Whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.

Please use our new online application system for all Family Support Program Applications. If you are a first time user, please complete the registration process. Once you are logged in, you will be directed to the applications. If you have already registered, simply log in.

If you are not able to complete the application using our online application system, please call 919-806-0101.

Family support programs are for eligible members of the National MPS Society.

Conference Scholarship Program

The National MPS Society is pleased to offer scholarships to the 33rd Annual Family Conference, December 19-21 at Hilton Orlando Lake Buena Vista at Disney Springs, in Orlando, FL. Scholarships will be awarded to a parent or legal guardian of a child with MPS or ML. Scholarships will help enable families to attend the conference who are otherwise not financially able to do so. Preference is given to families attending a conference for the first time. Conference scholarships details will be released soon, so please check back on this page.

Adults with MPS and ML are invited to register for our SPIRIT conference. Registration and scholarships for the SPIRIT conference will be a separate process.

The application deadline and application details will be released in March. Applications are only accepted using our online application system.

2019 Conference Scholarship Guidelines


Continuing Education Scholarship Program

Post secondary education scholarships are available for individuals with MPS and ML, their siblings (under age 30), their children, and their parents. Scholarships are awarded in increments of $1,000 for full-time students, $500 for part-time students, and the Jeffrey Bardsley CED scholarship awards $5,000.
Scholarship applications are available in January. The application deadline is March 15. Applications are only accepted using our online application system. Please review the current guidelines for 2019 to ensure eligibility.

2019 Guidelines: Individuals with MPS or ML

2019 Guidelines: Siblings, Parents, and Children of Adults with MPS or ML

2019 Guidelines: Jeffrey Bardsley Scholarship for Individuals with MPS or ML


Bereavement Expense Program

The National MPS Society seeks to provide support to all families throughout their MPS and ML journey. As part of this support, the Bereavement Expense Program helps to provide financial assistance through a one-time grant for up to $500 for final expenses.

The Bereavement Expense Program provides the grant directly to a funeral home or other professional service provider associated with final expenses, within 90 days following the death of an individual with MPS or ML. Please contact Leslie Urdaneta, Family Program Coordinator for more information. Applications are only accepted using our online application system.

2019 Bereavement Expense Program Guidelines


Extraordinary Experiences

A program designed especially for individuals affected with MPS and ML who are 13 years of age and older. Grants of up to $1000 are available to help individuals have their very own life-enriching extraordinary experience. Please review the 2019 guidelines to ensure eligibility.

Click here to apply

2019 Extraordinary Experiences Guidelines


Family Assistance Program

We have run out of funds for the remainder of the 2019 calendar year.  We look forward to assisting you in 2020.

Grants for special equipment or medical aids may be requested up to a maximum of $3,000 for parents of an individual with MPS or ML or an adult with MPS or ML per 12-month period, dependent on available funds and committee approval.

2019 Family Assistance Program Guidelines


Journey Assistance Program

Assistance grants to help purchase exceptional items needed during the MPS journey. Items requested shall be for exceptional items that have the potential to make your life easier or more enjoyable. These exceptional items typically have limited funding options, and are often out-of-pocket expenses for families. Journey grants will be awarded for 40 percent of the total purchase price and will not exceed $500 per individual with MPS or ML.

Click here to apply.

2019 Journey Assistance Program Guidelines


Medical Travel Assistance Program

We have run out of funds for the remainder of the 2019 calendar year.  We look forward to assisting you in 2020.

Families may need to travel long distances to consult with medical professionals who are knowledgeable about MPS and ML. The Medical Travel Assistance Program (MTAP) helps fund out-of-town travel costs for non-recurring medical appointments that are 200 or more miles away from their home. MTAP may reimburse up to $750 in transportation and hotel costs per affected individual per 12 month period.

2019 Medical Travel Assistance Program Guidelines


Regional Social Events

We encourage families to arrange social gatherings for other families in their region. The National MPS Society offers grants to assist with funding of your event.

Click here to apply.

2019 Regional Social Guidelines

 

 

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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