Funding for family support programs in 2021 and 2022 is provided through the Pennies for Nicoll Foundation

Whether it’s financial assistance during a hard time, a special treat for a family member, or to help make educational dreams come true, we support MPS and ML families across the nation.

Please use our online application system for all Family Support Program Applications. If you are a first time user, please complete the registration process. Once you are logged in, you will be directed to the applications. If you have already registered, simply log in on the left hand side of the page.

If you are not able to complete the application using our online application system, please call 919-806-0101 or email Leslie Urdaneta, Director of Family Support & Communication.

Family support programs are for eligible members of the National MPS Society. Membership should be renewed for 2022 in order to apply for programs. Please review all program guidelines prior to submitting an application.

Conference Scholarship Program

The National MPS Society is pleased to offer scholarships to the Annual Family and Scientific Conferences in Nashville, Tennessee. This will take place from August 4-6, 2022.

Scholarships will be awarded to a parent or legal guardian of a child with MPS or ML. Scholarships will help enable families to attend the conference who are otherwise not financially able to do so. Preference is given to families attending a conference for the first time.

Applications are closed. Newly diagnosed families may email Leslie for information on how to attend.

2022 Conference Scholarship Guidelines


Continuing Education Scholarship Program

Post secondary education scholarships are available for individuals with MPS or ML, their siblings (under age 30), their children, and their parents. Scholarships are awarded in increments of $1,000 for full-time students, $500 for part-time students, and the Jeffrey Bardsley scholarship awards $5,000. The Klenke-Kirch sibling scholarship is a supplemental scholarship offering $500 in addition to an award from the Society.

Scholarship applications are available in January. The application deadline is March 7, 2022. Applications are only accepted using our online application system. Please review the current guidelines to ensure eligibility. The application checklist is available to help track deadlines and requirements for applying.

2022 Application Guidelines for Individuals with MPS or ML

2022 Application Guidelines for Siblings, Children, and Parents of Individuals with MPS or ML

2022 Application Guidelines for Jeffrey Bardsley Scholarship (Individuals with MPS or ML only)

2022 Application Guidelines for Klenke-Kirch Sibling Scholarship (Siblings of Individuals with MPS or ML only)

2022 Continuing Education Scholarship Program Application Checklist


Bereavement Expense Program

The National MPS Society seeks to provide support to all families throughout their MPS and ML journey. As part of this support, the Bereavement Expense Program helps to provide financial assistance through a one-time grant for final expenses.

The Bereavement Expense Program provides the grant directly to a funeral home or other professional service provider associated with final expenses, within 90 days following the death of an individual with MPS or ML. Please contact Leslie Urdaneta, Director of Family Support & Communication for more information.

2022 Bereavement Expense Program Guidelines


Extended Hospitalization Relief

The Extended Hospitalization Relief (EHR) grant provides financial support on behalf of an individual with MPS or ML who has experienced an inpatient hospitalization for a minimum of 30 days. To apply, please contact Leslie Urdaneta, Director of Family Support & Communication.

2022 Extended Hospitalization Relief Grant Guidelines


Extraordinary Experiences

A program designed especially for individuals diagnosed with MPS and ML who are 13 years of age and older. Grants of up to $1000 are available to help individuals have their very own life-enriching extraordinary experience. Please review the 2022 guidelines to ensure eligibility.

2022 Extraordinary Experiences Guidelines

Click here to apply


Family Assistance Program

Grants for special equipment or medical aids may be requested up to a maximum of $3,000 for parents of an individual with MPS or ML or an adult with MPS or ML per 12-month period, dependent on available funds and committee approval.

2022 Family Assistance Program Guidelines

Click here to apply


Journey Assistance Program

Assistance grants to help purchase exceptional items needed during the MPS or ML journey. Items requested shall be for exceptional items that have the potential to make your life easier or more enjoyable. These exceptional items typically have limited funding options, and are often out-of-pocket expenses for families. Journey grants will be awarded for 40 percent of the total purchase price and will not exceed $500 per individual with MPS or ML.

2022 Journey Assistance Guidelines

Click here to apply.


Medical Travel Assistance Program

Families may need to travel long distances to consult with medical professionals who are knowledgeable about MPS and ML. The Medical Travel Assistance Program (MTAP) helps fund out-of-town travel costs for non-recurring medical appointments that are 200 or more miles away from their home. MTAP may reimburse up to $500 in transportation and lodging costs per individual with MPS or ML per 12 month period.

2022 Medical Travel Assistance Program Guidelines

Click here to apply


Regional Social Events

We encourage families to arrange social gatherings for other families in their region. The National MPS Society offers grants to assist with funding of your event. Please contact [email protected] if you have interest in hosting an event in your area.

2022 Regional Social Event Guidelines

Click here to apply

 

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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