Family Support Programs

Whether it’s financial assistance during a hard time, a special treat for an affected family member or to help make educational dreams come true, we support MPS and ML families across the nation.

Please use our new online application system for all Family Support Program Applications. If you are a first time user, please complete the registration process. Once you are logged in, you will be directed to the applications. If you have already registered, simply log in.

If you are not able to complete the application using our online application system, please call 919-806-0101.

Family support programs are for eligible members of the National MPS Society.

Conference Scholarship Program

The National MPS Society is pleased to offer scholarships to the 15th International Symposium, August 2-4, 2018 at Sheraton San Diego Hotel & Marina, in San Diego, CA. Scholarships will be awarded to a mother, father, or legal guardian of a child with MPS or ML, or to an adult with MPS or ML. Scholarships will help enable families and individuals, who are not financially able, to attend the conference. Preference is given to families attending a conference for the first time. Conference scholarships can be allocated to hotel (maximum of three nights) and travel (maximum of $500). To register for the conference, visit the 15th International Symposium website.

The application deadline is March 22, 2018. Applications are only accepted using our online application system. (PLEASE NOTE: The application process is closed for this year.)

Conference Scholarship Guidelines 2018

Conference scholarship information and the application process for the 2019 Family Conference in Orlando, FL will be available in early 2019.


Continuing Education Scholarship Program

Post secondary education scholarships are available for individuals with MPS and ML, their siblings (under age 30), their children, and their parents. Scholarships are awarded in increments of $1,000 for full-time students, $500 for part-time students, and the Jeffrey Bardsley CED scholarship awards $5,000.
Scholarship applications are available in January. The application deadline is March 15. Applications are only accepted using our online application system. Please review the current guidelines for 2019 to ensure eligibility.

2019 Guidelines: Individuals with MPS or ML

2019 Guidelines: Siblings, Parents, and Children of Adults with MPS or ML

2019 Guidelines: Jeffrey Bardsley Scholarship for Individuals with MPS or ML


Bereavement Expense Program

The National MPS Society seeks to provide support to all families throughout their MPS and ML journey. As part of this support, the Bereavement Expense Program helps to provide financial assistance through a one-time grant for up to $500 for final expenses.

The Bereavement Expense Program provides the grant directly to a funeral home or other professional service provider associated with final expenses, within 90 days following the death of an individual with MPS or ML. Please contact Leslie Urdaneta, Family Program Coordinator for more information. Applications are only accepted using our online application system.

2019 Bereavement Expense Program Guidelines


Extraordinary Experiences

A program designed especially for individuals affected with MPS and ML who are 13 years of age and older. Grants of up to $1000 are available to help individuals have their very own life-enriching extraordinary experience. Please review the 2019 guidelines to ensure eligibility.

Click here to apply

2019 Extraordinary Experiences Program Guidelines


Family Assistance Program

Grants for special equipment or medical aids may be requested up to a maximum of $3,000 for parents of an individual with MPS or ML or an adult with MPS or ML per 12-month period, dependent on available funds and committee approval.

Click here to apply

2019 Family Assistance Program Guidelines


Journey Assistance Program

Assistance grants to help purchase exceptional items needed during the MPS journey. Items requested shall be for exceptional items that have the potential to make your life easier or more enjoyable. These exceptional items typically have limited funding options, and are often out-of-pocket expenses for families. Journey grants will be awarded for 40 percent of the total purchase price and will not exceed $500 per individual affected with MPS or ML.

Click here to apply.

2019 Journey Assistance Program Guidelines

Medical Travel Assistance Program

Families may need to travel long distances to consult with medical professionals who are knowledgeable about MPS and ML. The Medical Travel Assistance Program (MTAP) helps fund out-of-town travel costs for non-recurring medical appointments that are 200 or more miles away from their home. MTAP may reimburse up to $750 in transportation and hotel costs per affected individual per 12 month period.

Click here to apply.

2019 Medical Travel Assistance Program Guidelines


Regional Social Events

We encourage families to arrange social gatherings for other families in their region. The National MPS Society offers grants to assist with funding of your event.

Click here to apply.

2019 Regional Social Event Guidelines

 

 

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs