Family Support Programs
Whether it’s financial assistance during a hard time, a special treat for a family member, or to help make educational dreams come true, we support MPS and ML families across the nation.
Please use our online application system for all Family Support Program Applications. If you are a first time user, please complete the registration process. Once you are logged in, you will be directed to the applications. If you have already registered, simply log in on the left hand side of the page.
Family support programs are for eligible members of the National MPS Society. Membership should be updated/renewed for 2023 in order to apply for programs. Please review all program guidelines prior to submitting an application.
The National MPS Society is pleased to offer scholarships to the Annual Family and Scientific Conferences in Bethesda, Maryland. This will take place from September 28-30, 2023.
Scholarships will be awarded to a parent or legal guardian of a child with MPS or ML. Scholarships will help enable families to attend the conference who are otherwise not financially able to do so. Preference is given to families attending a conference for the first time.
Members will be notified via email when applications are open.
Continuing Education Scholarship Program
Post secondary education scholarships are available for individuals with MPS or ML, their siblings (under age 30), their children, and their parents. Scholarships are awarded in increments of $1,000 for full-time students, $500 for part-time students, and the Jeffrey Bardsley scholarship awards $5,000. The Klenke-Kirch sibling scholarship is a supplemental scholarship offering $500 in addition to an award from the Society.
Scholarship applications are available in January. The application deadline is March 6, 2023. Applications are only accepted using our online application system. Please review the current guidelines to ensure eligibility. The application checklist is available to help track deadlines and requirements for applying.
Bereavement Expense Program
The National MPS Society seeks to provide support to all families throughout their MPS and ML journey. As part of this support, the Bereavement Expense Program helps to provide financial assistance through a one-time grant for final expenses.
The Bereavement Expense Program provides the grant directly to a funeral home or other professional service provider associated with final expenses, within 90 days following the death of an individual with MPS or ML. Please contact Leslie Urdaneta, Director of Family Support & Communication for more information.
Extended Hospitalization Relief
The Extended Hospitalization Relief (EHR) grant provides financial support on behalf of an individual with MPS or ML who has experienced an inpatient hospitalization for a minimum of 30 days. To apply, please contact Leslie Urdaneta, Director of Family Support & Communication.
A program designed especially for individuals diagnosed with MPS and ML who are 13 years of age and older. Grants of up to $1000 are available to help individuals have their very own life-enriching extraordinary experience. Please review the 2023 guidelines to ensure eligibility.
Family Assistance Program
Grants for special equipment or medical aids may be requested up to a maximum of $3,000 for parents of an individual with MPS or ML or an adult with MPS or ML per 12-month period, dependent on available funds and committee approval.
Journey Assistance Program
Assistance grants to help purchase exceptional items needed during the MPS or ML journey. Items requested shall be for exceptional items that have the potential to make your life easier or more enjoyable. These exceptional items typically have limited funding options, and are often out-of-pocket expenses for families. Journey grants will be awarded for 40 percent of the total purchase price and will not exceed $500 per individual with MPS or ML.
Medical Travel Assistance Program
Families may need to travel long distances to consult with medical professionals who are knowledgeable about MPS and ML. The Medical Travel Assistance Program (MTAP) helps fund out-of-town travel costs for non-recurring medical appointments that are 200 or more miles away from their home. MTAP may reimburse up to $500 in transportation and lodging costs per individual with MPS or ML per 12 month period.
Regional Social Events
We encourage families to arrange social gatherings for other families in their region. The National MPS Society offers grants to assist with funding of your event. Please contact [email protected] if you have interest in hosting an event in your area.