Families often face difficult and painful losses, and we want to help. If you have a death in your family or need to reach out, please contact us.


CYCLE Conference 2019

The National MPS Society invites you to attend the Celebrating Your Cherished Life Experiences (CYCLE) conference to support our bereaved families. This conference will be held on May 17-18, 2019 at the Omni Shoreham Hotel in Washington, D.C. Please visit the link below for more information.

CYCLE conference information


Bereavement Expense Program

The National MPS Society seeks to provide support to all families throughout their MPS and ML journey. As part of this support, the Bereavement Expense Program helps to provide financial assistance through a one-time grant for up to $500 for final expenses.

The Bereavement Expense Program provides the grant directly to a funeral home or other professional service provider associated with final expenses, within 90 days following the death of an individual with MPS or ML. Please contact Leslie Urdaneta, Family Program Coordinator for more information. Applications are only accepted using our online application system.

Bereavement Expense Program Guidelines


Bereavement Resources and Links

We hope you find these links to information helpful in your journey. If you have resources to add, please contact us. Disclaimer: the National MPS Society offers these suggested sites for additional information; however, inclusion in this list does not constitute any real or implied endorsement of their content by the Society.

Bereaved Parents of the USA

Compassionate Friends

Courageous Parents Network: CPN

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs