Families often face difficult and painful losses, and we want to help. We are currently creating assets that may be helpful to families facing a loss, but these are still under construction. If you have a death in your family or need to reach out, please contact us.

Bereavement Expense Program

The National MPS Society seeks to provide support to all families throughout their MPS and ML journey. As part of this support, the Bereavement Expense Program helps to provide financial assistance through a one-time grant for up to $500 for final expenses.

The Bereavement Expense Program provides the grant directly to a funeral home or other professional service provider associated with final expenses, within 90 days following the death of an individual with MPS or ML. Please contact Leslie Urdaneta, Family Program Coordinator for more information. Applications are only accepted using our online application system.

Bereavement Expense Program Guidelines

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs