Bereavement
Families often face difficult and painful losses, and we want to help. If you have a death in your family or need to reach out, please contact us.
Bereavement Expense Program
The National MPS Society seeks to provide support to all families throughout their MPS and ML journey. As part of this support, the Bereavement Expense Program helps to provide financial assistance through a one-time grant for up for final expenses.
The Bereavement Expense Program provides the grant directly to a funeral home or other professional service provider associated with final expenses, within 90 days following the death of an individual with MPS or ML. Please contact Leslie Urdaneta, Director of Family Support and Communication for more information.
Bereavement Expense Program Guidelines
Angels Among Us
Each year, we publish Angels Among Us to remember those who have passed away. Please visit this link to learn how to submit (submissions are due by mail with annual membership renewal or through an online form by March 1 of each year) or to view the current edition of this publication.
Bereavement Resources and Links
We hope you find these links to information helpful in your journey. If you have resources to add, please contact us. Disclaimer: the National MPS Society offers these suggested sites for additional information; however, inclusion in this list does not constitute any real or implied endorsement of their content by the Society.
- This program provides support groups and information for family members after the loss of a child. BPUSA hosts an annual family conference for support.
- This program provides support groups and information for family members after the loss of a child. Information regarding state and local support is available.
Courageous Parents Network: CPN
- This network was created for and by parents, and provides support, information, and knowledge bases around issues of parenting and caring for children with illnesses, as well as bereavement and loss support.