Upon request of members of our MPS III (Sanfilippo Syndrome) community, the National MPS Society will offer virtual support sessions to members wanting to connect, collaborate, and share experiences. We understand that connection with others is crucial.
Two sessions will be available for parents or caregivers and will take place using Zoom on your computer or mobile device. Please click here to complete the form to sign up to receive the Zoom links and participate in the sessions.
We recognize that the stress of caregiving has increased during the COVID-19 pandemic. On top of anxiety, the cascade of changes has disrupted daily routines and coping strategies. Additional challenges come for those newly diagnosed during these recent months. The Sanfilippo Support Sessions will provide a supportive community to come together for a time of discussion and support specifically for caregivers.
These sessions will be held on Tuesday nights from 8:00 – 9:00 p.m. EST on Aug. 4th and 18th.