2013 Research Grants:

The National MPS Society allocated $530,000 in grant funding for 2013, which includes the second year funding for grants awarded in 2012, plus the 2013 grants. The funding we provide is critical as we move forward with our mission to find cures for MPS and ML. We received 48 letters of intent from researchers around the world for the six grants offered in 2013. After reviewing those letters, our Scientific Advisory Board review committee requested full grant proposals from 13 researchers.

The MPS Society will also fund $25,000 to support the Lysosomal Disease Network’s NIH grant research goals. The funding is designed for the Neuroimaging Core, which will benefit the four MPS projects. An additional $20,000 will be offered for an ML grant in partnership with ISMRD (International Society for Mannosidosis and Related Diseases). A $10,000 partnership grant with the Ryan Foundation funded the University of MN project “Longitudinal Studies of Brain Structure and Function in MPS Disorders.” The National MPS Society also provides funding for post-doctoral fellows to attend the Gordon Conference on lysosomal diseases.

Pathogenesis of Bone Disease in Mucopolysaccharidosis Disorders

two years @ $30,000 each year
Lachlan Smith, PhD
University of Pennsylvania
Philadelphia, PA

Adjunctive therapy for Hurler syndrome.

Richard Steet, PhD
University of Georgia
Athens, GA


Dr. Dwight Koeberl
Duke University
Durham, NC

Development of pharmacological chaperone therapy for MPS II.

Vito Ferro, PhD
University of Queensland
Brisbane, Queensland

Delivery of sulfamidase to the brain.

Jeffrey Esko, PhD
University of California, San Diego
La Jolla, CA

Manifestations of Cardiovascular Disease in Morquio A: Evaluation, Assessment, and Therapy

Adriana Montano, PhD
St. Louis University
St. Louis, MO


Raymond Wang, M.D.
CHOC Children’s Hospital
Orange, CA

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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