"I believe a cure is possible and we will eliminate the challenges of MPS. Join us to make this a reality for Carla Halk Crain and all children living with MPS"

Carla Halk Crain

Our son Blake Halk lost his fight with MPS I: “Hurler’s Syndrome on Feb. 14th, 2019
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Carla's Story

Our journey/battle with MPS I began when Blake was almost two years old. It was a huge roller coaster with unexpected twists & turns, watching your child fight for their life is absolutely no easy task & you can feel (as a parent) so very helpless most of the time. With such a kind heart he never met a stranger, it never took long for someone to fall in love with his brave, courageous fighting spirit! Our boy was constantly surrounded by so much love & as a mom that was amazing to watch!! He took his last breath on Thursday, February 14th, 2019! The one main thing that is helping us get through each day is knowing our sweet boy is in no more pain & has no more limitations. Miss our boy so very much! 💜💜

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The National MPS Society exists to cure, support and advocate for MPS and ML.

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