Our son Blake Halk lost his fight with MPS I: “Hurler’s Syndrome on Feb. 14th, 2019
Our journey/battle with MPS I began when Blake was almost two years old. It was a huge roller coaster with unexpected twists & turns, watching your child fight for their life is absolutely no easy task & you can feel (as a parent) so very helpless most of the time. With such a kind heart he never met a stranger, it never took long for someone to fall in love with his brave, courageous fighting spirit! Our boy was constantly surrounded by so much love & as a mom that was amazing to watch!! He took his last breath on Thursday, February 14th, 2019! The one main thing that is helping us get through each day is knowing our sweet boy is in no more pain & has no more limitations. Miss our boy so very much! 💜💜