As with most children with Sanfilippo Syndrome, Blair did not show any signs of the disorder until she was about 3 years old and began falling behind her peers. After years of misdiagnosis, we were ultimately told that Blair had this fatal disease that we didn’t even know existed. It was at that point that as a family we focused our attention on making every day happy for Blair. This was not a difficult task as she gave us so much opportunity to love on her and spoil her. On April 4, 2017 our precious daughter went to heaven at the young age of 15. We miss her terribly.
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