Fact Sheets

ABLE Act Overview
Cardiac Problems
Caregiver Support
Carpal Tunnel Syndrome and Trigger Digits
Communicating Hydrocephalus CPAP and BiPAP
Emotional Responses to Diagnosis
End of Life Care Resources
Endocrine Disorders
Family Coping Strategies
General Research
Genetic Counseling
Grief Support
Guardianship Conservatorship
Hip Surgery
Medical Identification Information
Melatonin Fact Sheet
MPS Transplants (HSCT)
Newborn Screening
Otitis Media
Orthopedic Problems in Children with MPS

Pain Management
Palliative Care

Physical Therapy for Parents
Physical Therapy ‰ÛÒ for Professionals
Prenatal and Preimplantation Diagnosis
Sharing the Diagnosis
Social Security Disability
Special Education and Your Child‰Ûªs IEPåÊ
Spica Cast Care
Stem Cell Transplant Questions
Tube Feeding Use of Medication
Wish Organization
Writing a Letter of Support
Your Donation: Your Decision

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs