Fact Sheets

Glossary
ABLE Act Overview
Cardiac Problems
Caregiver Support
Carpal Tunnel Syndrome and Trigger Digits
Communicating Hydrocephalus CPAP and BiPAP
Emotional Responses to Diagnosis
End of Life Care Resources
Endocrine Disorders
Family Coping Strategies
Family Support Programs
General Research
Genetic Counseling
Grief Support
Guardianship Conservatorship
Hip Surgery
Medical Identification Information
Melatonin Fact Sheet
MPS Transplants (HSCT)
Newborn Screening
Otitis Media
Orthopedic Problems in Children with MPS

Pain Management
Palliative Care
Pamidronate

Physical Therapy – for Parents
Physical Therapy – for Professionals
Port-a-Cath
Prenatal and Preimplantation Diagnosis
Seizures
Sharing the Diagnosis
Social Security Disability
Special Education and Your Child’s IEP 
Spica Cast Care
Stem Cell Transplant Questions
Tracheostomy
Tube Feeding Use of Medication
Wish Organization
Writing a Letter of Support
Your Donation: Your Decision

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs