Beginning your journey with MPS or ML

 
 

Where to begin

  • Learn more about the specific MPS syndromes, treatments and clinical trials by visiting the corresponding page.

 

  • Schedule a home visit with Family Support Lead Coreen Gray who can help guide you through a new diagnosis and learn what to expect.

 

  • Become a member of the National MPS Society. Membership is free for patients, friends and families.

 

 

  • Connect with other families who have a child with the same syndrome. The National MPS Society office can help make this happen. Other parents are the best resource available. Contact us!

 

 

 

 

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs