Beginning your journey with MPS or ML

Where to begin

  • Become a member of the National MPS Society. Membership is free for patients, friends and families.


  • Learn more about the specific MPS syndromes, treatments and clinical trials by visiting the corresponding page.


  • Contact our staff who can link you with our new Pathways Program for newly diagnosed families.



  • Connect with other families who have a child with the same syndrome. The National MPS Society office can help make this happen. Other parents are the best resource available. Contact us!



Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs