Mobile Divider Image

Links and Resources

Press Releases

cork board with black and white photographs attached
  • Newsroom
  • Topic:
Clear Tags x
15 Jan, 2025

Angels Among Us: Remembering Our Loved Ones

Angels Among Us: Remembering Our Loved Ones Each year, we remember individuals with MPS or...

View Resource

3 Jan, 2025

A Life of Passionate Curiosity: Autumn’s Journey with MPS VI

Autumn M. was diagnosed with Mucopolysaccharidosis VI (MPS VI) at just 18 months old, at a time when no...

View Resource

12 Dec, 2024

In Loving Memory: Eddie Bell Jr.

Eddie James Bell Jr. was born on July 29, 1981, and brought love and light to all who knew him until his...

View Resource

22 Nov, 2024

Free Activities at Disney to Boost Your 38th Annual Family & Scientific Conference Experience!

We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual Family...

View Resource

15 Nov, 2024

Transportation at Walt Disney World

We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual...

View Resource

7 Nov, 2024

Researcher and Advocate: Dr. Kakkis

In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of...

View Resource

31 Oct, 2024

Walt Disney World Guide for First-Timers

We hope you are planning on joining us in Orlando, FL, from December 19-21, 2024, for our 38th Annual...

View Resource

16 Oct, 2024

    2024 Fall Courage

    Our 2024 Fall edition of Courage is now available electronically to view or download! Click to read the...

    View Resource