For most of his 10 years, Jacob has been a puzzle. Born prematurely, he faced challenges from the start....
Autumn M. was diagnosed with Mucopolysaccharidosis VI (MPS VI) at just 18 months old, at a time when no...
Eddie James Bell Jr. was born on July 29, 1981, and brought love and light to all who knew him until his...
In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of...
"I was born with a rare disease without even knowing it," explains Fanny Z., a 14-year member of the Society...
Lucas was the youngest of four children. From the start, he stood out—not just as the baby of the family, but...
Benji C. is a strong, confident, self-assured, loud, and determined 8-year-old with MPS I. When Benji was...
Let us introduce you to Jacob Ray (J.R.) Anton, one of the many faces of MPS. J.R., who passed away...