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  • Living With Courage
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27 Jan, 2025

    A Mother’s Relentless Fight: Jacob’s Journey with MPS IIIB

    For most of his 10 years, Jacob has been a puzzle. Born prematurely, he faced challenges from the start....

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    3 Jan, 2025

    A Life of Passionate Curiosity: Autumn’s Journey with MPS VI

    Autumn M. was diagnosed with Mucopolysaccharidosis VI (MPS VI) at just 18 months old, at a time when no...

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    12 Dec, 2024

    In Loving Memory: Eddie Bell Jr.

    Eddie James Bell Jr. was born on July 29, 1981, and brought love and light to all who knew him until his...

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    7 Nov, 2024

    Researcher and Advocate: Dr. Kakkis

    In the early days of his career, a young scientist named Emil Kakkis found himself deep in the world of...

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    15 Oct, 2024

    Fanny’s Journey with MPS IV A

    "I was born with a rare disease without even knowing it," explains Fanny Z., a 14-year member of the Society...

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    4 Oct, 2024

    Lucas’s Legacy

    Lucas was the youngest of four children. From the start, he stood out—not just as the baby of the family, but...

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    11 Sep, 2024

    Benji: Strong, Confident, and Self-Assured

    Benji C. is a strong, confident, self-assured, loud, and determined 8-year-old with MPS I. When Benji was...

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    9 Sep, 2024

    J.R. Anton: A True Tar Heel

    Let us introduce you to Jacob Ray (J.R.) Anton, one of the many faces of MPS. J.R., who passed away...

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