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27 Jul, 2021

Physical Therapy for Children With MPS and ML

Stacey C. Dusing, PT, MSAngela Rosenberg, DrPH, PTSadye Paez, PT, MSWendy Westphal, MPTReviewed and updated...

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3 Jun, 2020

Writing a Letter of Support

Amy Fisher, MSTerri Klein, NPGC Individuals with MPS and ML and their families often need to call on...

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3 Jun, 2020

Wish Organizations

Wish organizations were developed for children with life-threatening medical conditions who are between the...

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3 Jun, 2020

Stem Cell Transplant Questions

Klane White, MD Stem cell transplantation can be an overwhelming prospect, especially for a family...

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3 Jun, 2020

Social Security

MPS and ML symptoms can range from dwarfism to intellectual disability and orthopedic issues to vision...

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3 Jun, 2020

Seizures

What is a Seizure?Seizures are neurologic episodes characterized by sudden disruption of the brain’s normal...

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3 Jun, 2020

Port-A-Cath

Amy Holland A Port-a-Cath or Mediport (port) is a device for intravenous access in patients who require...

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