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Press Releases

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11 Sep, 2024

Benji: Strong, Confident, and Self-Assured

Benji C. is a strong, confident, self-assured, loud, and determined 8-year-old with MPS I. When Benji was...

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22 Sep, 2022

Newborn Screening Article Release

Matthew Ellinwood, Chief Scientific Officer, authored a new publication published in the American Journal of...

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19 Nov, 2021

North Carolina Signs Legislation for Newborn Screening to Support RUSP Alignment

Download Full Text Durham, NC November 19, 2021 - The National MPS Society shares excellent news of...

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27 Jul, 2021

Physical Therapy for Children With MPS and ML

Stacey C. Dusing, PT, MSAngela Rosenberg, DrPH, PTSadye Paez, PT, MSWendy Westphal, MPTReviewed and updated...

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3 Jun, 2020

Your Donation, Your Decision

Terri Klein, NPGC The National MPS Society is a 501(c)3 public charity nonprofit organization dedicated...

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3 Jun, 2020

Writing a Letter of Support

Amy Fisher, MSTerri Klein, NPGC Individuals with MPS and ML and their families often need to call on...

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