KARINA’S BIRTHDAY FUNDRAISER!
Karina was diagnosed with Sanfilippo syndrome (MPS IIIA) when she was five years old. Sanfilippo is a neurological storage disorder causing progressive damage to the body. As a toddler, she loved to run, sing and play. As the disease has progressed, it has caused her to lose the ability to walk, talk and eat by mouth. Yet, she courageously fights the disease and shows all those around her what unconditional love really means. Sanfilippo is a terminal disorder, many do not live past their teenage years. She has surpassed that expectation and will turn 25 years old on January 29, 2017!
To honor Karina’s 25 years, we are holding this fundraiser. Please consider donating $25 for her 25th birthday. However, any amount is appreciated!
All donations will go to the National MPS Society and are tax deductible. The donations will go towards finding a cure for MPS III, so we can help all children who currently suffer from this disorder.
Ten years ago, her dad made this 20 minute video for her 15th birthday. It shows the progression of the disease through the pictures and videos of Karina as a child.
Thanks for visiting my page! Please help me with my fundraising by contributing to this great cause.
Making a donation is easy and safe- simply click the “Donate Online” button in the upper right to donate.
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The mission of the National MPS Society is to fund research and provide support for families affected by MPS and related diseases.
Please help our family and support the National MPS Society. Every donation will make a difference in the lives of those affected by MPS and related diseases. Please visit www.mpssociety.org for more information.