"I believe a cure is possible and we will eliminate the challenges of MPS. Join us to make this a reality for Kali Gegenheimer and all children living with MPS"

My goal is to raise $4,000
Total: $160

Kali's Story

Hello, I want to raise awareness for the National MPS Society to help them raise funds for MPS I and other related diseases. MPS has made me who I am today. I was diagnosed at the age of 11 but started showing signs at the age of five.

It has been a long hard road to diagnosis and the road was not easy. I have had 5 surgeries since diagnosis and will have many more in my near future.

This disease is so complicated and yet so simple to understand.  I am missing an enzyme that helps remove waste from my body.  Enzyme Replacement Therapy helps provide an artificial enzyme back into cells to remove this waste.  Still, this is not a cure.

We are in need of funding to help create different treatments and hopefully a cure one day. Please make a donation and help us out.

Thanks for visiting my page! Please help me with my fundraising by contributing to this great cause!

Making a donation is easy and safe- simply click the “Donate Now” button in the upper right to donate.

Make sure to bookmark this page and come back often to check on my progress!

The mission of the National MPS Society is to fund research and provide support for families affected by MPS and related diseases.

Please help our family and support the National MPS Society. Every donation will make a difference in the lives of those affected by MPS and related diseases. Please visit www.mpssociety.org for more information.

Messages in Kali's Guestbook

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  • Jeffrey Paquin

    Happy to help!

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The National MPS Society exists to cure, support and advocate for MPS and ML.

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