"I believe a cure is possible and we will eliminate the challenges of MPS. Join us to make this a reality for Jennifer Klein and all children living with MPS"

My goal is to raise $0
Total: $225

Jennifer's Story

Jennifer is 26 years old and was diagnosed in 1999 with Mucolipidosis, (ML) Type III.  The road to diagnosis was difficult as Jennifer didn’t present symptoms early on in childhood.  Doctors had misdiagnosed Jennifer for 1-1/2 years with another disorder.

Today, Jennifer has had multiple surgeries for her back, lungs, and most recently a left hip replacement.  She suffers from osteoporosis and benefits from a quarterly infusion that helps strengthen her bones and provides some pain relief. Mucolipidosis is a progressive disease that has no treatment and has no cure.

Our family has made many friends around the world as we travel on this path of rare diseases.  She is only one of approximately 50 patients in the United States with her disease.

Together, our family’s goal is to raise awareness and funds for the National MPS Society.  The Society supports research for MPS and related diseases, this includes Mucolipidosis.   It is critical we raise funds to develop a treatment for those suffering. There are treatments for some of the MPS diseases that are similar to Jennifer, but no breakthroughs yet for hers.

Jennifer is fortunate that she is attending University and double majoring in biology and psychology at NC State University.  She graduates in December.  She struggles each day with pain, but has such courage!  Her motto, “No, isn’t an option,” resigns with us each day.

Thanks for stopping in and taking a look around the webpage.  This page is built in honor of Jennifer.

International MPS Awareness Day is May 15th. We have updated this page in her honor.

Before you leave the site consider helping us by making a donation.

The Klein Family

Checks can be mailed to:

National MPS Society, P.O. Box 14686 Durham, NC 27709

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The mission of the National MPS Society is to fund research and provide support for families affected by MPS and related diseases.

Please help our family and support the National MPS Society. Every donation will make a difference in the lives of those affected by MPS and related diseases. Please visit www.mpssociety.org for more information.

Messages in Jennifer's Guestbook

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  • Michael Schleter

    Love you, Jenny!
  • Terri Klein

    We love you, Jenny!

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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