In July 2011, Jack Todd, was diagnosed with the rare genetic disease called Mucopolysaccharidoses (MPS). Specifically, Jack was diagnosed with Hunter Syndrome or MPS II. MPS and related diseases are genetic lysosomal storage diseases (LSD) caused by the body’s inability to produce specific enzymes. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system.
Gift of Hope
It’s that most wonderful time of year when we embrace age-old traditions – shopping for gifts, trimming our trees, wrapping presents, sending greetings and spending priceless time with family and friends. Each year, millions of us exchange gifts as a sign of friendship, love and gratitude. The act of giving is a joyful event, often even more than the act of receiving.
The good news is that the act of giving doesn’t always require a wrapped gift. Rechanneling the spirit of generosity and good will towards something that can make a significant difference and share holiday cheer can be very rewarding for you and the recipient.
In that spirit, we ask that in lieu a holiday gift this year, please help us raise funds for research and family support for the National MPS Society and give a gift in honor of your friends and family members.
When making your donation please designate your honoree/gift recipient and include your holiday note to them in the “special notes” section in the “donate now” tab.
Just click the “Donate” button now to make your gift.
When making your donation please designate your honoree/gift recipient and include your holiday note to them in the “special notes” section.
Our goal is to raise $5,000 for GIVE THE GIFT OF HOPE!
How Your Donation Makes a Difference
The money raised will help the National MPS Society in our efforts to fight this disease by raising awareness and to continue the society’s mission of providing support for our families and funding research for a cure. Funds raised help families obtain durable medical goods such as hearing aids, special wheel chairs, reinforced strollers, hospital beds, and handicap accessible home improvements which are not covered by insurance. It will also fund pivotal research to find new treatments and cures for MPS and related diseases. Every donation received makes a difference in the life of a child.
The mission of the National MPS Society is to fund research and provide support for families affected by MPS and related diseases.
Please help our family and support the National MPS Society. Every donation will make a difference in the lives of those affected by MPS and related diseases. Please visit www.mpssociety.org for more information.
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