"I believe a cure is possible and we will eliminate the challenges of MPS. Join us to make this a reality for Cooper Tippett and all children living with MPS"

Cooper Tippett

Cooper is an athletic, quick witted 6 year old. Although he happily and enthusiastically plays catch during his infusion, he is completely traumatized by the needle touching his skin. This heart wrenching rollercoaster of emotion repeats every week as he receives his life-saving medicine.

My goal is to raise $50,000
Total: $43,397

Cooper's Story

Cooper was diagnosed with Morquio Syndrome (MPS IVA) on January 30, 2014. He was 16 months old, and besides a bump on his back, you wouldn’t know anything was wrong with the energetic, ornery, quick to laugh, babbling toddler.

Having our baby diagnosed with a rare, progressive, terminal disease was life shattering. We continue adjusting to our ever changing situation, and are comforted that Cooper can receive weekly Enzyme Replacement Therapy infusions of Vimizim to slow the progression of the disease. We are blessed to have this therapy so early in Cooper’s life, and we are certain his quality of life is benefitting from treatment.

We are lucky that the research (and the funding it required) to find a treatment for Morquio was completed by the time we were diagnosed. But we are not done. Funding research specific to MPS diseases is critical to the next step – finding a CURE.

100% of your donation will fund life-saving research to find a cure for our little boy and others like him.

About Cooper: Cooper is a sports nut. He loves to watch and play all kinds of sports including hockey, baseball, football, and soccer – all modified within the limitations of his short stature and cervical stenosis. He thoroughly enjoys music, whether it’s blasting his favorite song on Alexa or playing ACDC’s T-N-T on the drums, with big sister accompanying on the keyboard.

Cooper charms the nurses, doctors and fellow patients at our doctor appointments and infusion days. He has been through several surgeries and continues to handle six-hour infusion days like a champ. Cooper’s diagnosis has taught us patience, faith, and taking one day at time. He is an inspiration to us.

Making a donation is easy and safe- simply click the “Donate Online” button in the upper right to donate.

To keep posted on Cooper’s medical progress, please visit his Caring Bridge site: https://www.caringbridge.org/visit/coopertippett

 

The mission of the National MPS Society is to fund research and provide support for families affected by MPS and related diseases.

Please help our family and support the National MPS Society. Every donation will make a difference in the lives of those affected by MPS and related diseases. Please visit www.mpssociety.org for more information.

Messages in Cooper's Guestbook

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  • Donna Weaver

    I live in the Bay Area w/Morquio IV, 58/yrs old. If you want to contact me with any questions, feel free to. Being born in 1961, there was NO information available, no internet to search. My mom typed out letters to any/all Hospitals, looking for anyone who might know what this "Morquio" disease is that my pediatric doctor thought I might have.
  • Christine & Brian Tippett

    Cooper, you show us how to embrace life everyday. We love you. Keep up the hard work, little buddy!
  • Bridget Raleigh

    My Christmas wish is a cure for children living with rare diseases. Thank you for teaching us that you do the next best thing when faced with the unknown. Proud to be a Cooper’s Trooper!
  • Adam

    I am a Cooper Troopper and inspired my friends in MO to be one too.
  • David and Sarah Moore

    Much love to you all, from Aunt Sarah and Uncle David. You are in our hearts
  • Deborah & Carl Kruse

    He’s Why we do What we do (BBQ), and there’s no better reason.
  • Edge Gray

    Cooper is our neighbor and family friend. Edge decided for his 9th birthday party to request donations for Cooper's MPS fund instead of receiving gifts. Wonderful friends and family raised $425! Now let's get out and find a cure!! - Edge Gray and family
  • Auntie Auntie Mary Ann

    I am a Cooper's Trooper
  • David and Sarah Moore

    Thinking of you all, with much Aloha.
  • Carl and Deborah Kruse

    Grandma wasn't fast enough on the Gala Silent Auction :)
  • Robert & Patricia Kruse

    Cooper. . . you are a blessing! And your parents and big sister are pretty wonderful too.
  • David & Sarah Moore

    Much Love and "Merry Christmas" to you all. Aunt Sarah and Uncle David
  • Kathleen Lacy

    I am proud to be a Cooper Trooper!
  • Dana Kinslow

    Go Cooper Go! You inspire us all with your infectious smile and courageous spirit.
  • Tracy Higuera

    For an awesome little boy, with an amazing Mama!
  • Christine Tippett

    Donations from Cooper's Troopers BBQ & Cooper's Troopers T-shirts
  • Great Graandma Stella

    I am a Cooper's Trooper
  • Kathy E Hunter

    This family is amazing!
  • Chris Church

    Stella and Dot trunk show proceeds. We love our Cooper's Troopers!

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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