Welcome to Courage Pages!  Creating a Courage Page provides an opportunity for your Family to share your unique story, including pictures, to assist you in raising awareness for MPS and related diseases. This page can be for in Honor or in Memory of someone with MPS or a related disease and can be used for Fundraising. What is important is that you decide!

Our hope is that through Courage Pages, you are enabled to share your rare disease story with loved ones, friends, colleagues, physicians, legislators and anyone that wants to learn more about MPS and related diseases. Your story can include multiple photos and be updated as often by you as often as you like!

This is a terrific platform for raising funds and to tie into a fundraising event, you decide! Families have raised over $100,000 through Courage Pages and allocated the funds as they wanted – whether this is for syndrome specific research, family support or legislative efforts.

Ready to get started?

First begin by registering for your new page!  Register now.

We have created these detailed directions to help you with registering, creating and editing your page. We will do our very best to keep directions updated during software changes.

Already have an account? Log in to the left under Update Page.

Want to visit other Courage Pages?

Please scroll through the list of Families and Friends that have a Courage Page below and click the link to access their page.  These can be viewed in alphabetical order by clicking on the arrows to the right of the Child’s Name header.

If you are interested in building your own webpage for your loved one it is easy!  If you prefer for the Society to build the page for you, please contact us. If you need a form mailed to you please contact Rebecca Luchenbill at [email protected] or call 919.806.0101.

Myles Richardson

Syndrome: MPS I

This is Myles he has MPS-1 Hurler Syndrome-He is an energetic and curious little guy. His smile and laugh are contagious! With God all things are possible!- Matthew 19:26

Owen Groesch

Syndrome: MPS III

Owen is a happy boy with a heart as big as the sky. He has a laugh that is so contagious and his brain is filled with pure innocence and curiosity. He makes you laugh and feel happy constantly and lives each day so simply, surrounded by the things and people he loves. The simple vision of life that he sees, we will try harder to see. The things he feels, we feel immensely , and wherever he goes, we will follow. He is our Hero.

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs