MPS Events

We have some great events coming up! Click on the title for more information.

October 4: Do it Fore Dan Golf Tournament

12:30 p.m. – Moccasin Run Golf Course, Atglen, PA

October 12: Keller’s Carnival 

11:00 a.m. – Formerly Cagle Furniture, Cameron, NC

October 19: Post Office Cafe 28th Annual 5K Run & 1K Fun Run

9:30 a.m. – Post Office Cafe, Babylon, NY

December 19-20: 33rd Annual National MPS Society Conference

Hilton Lake Buena Vista, Orlando, FL

December 20: Destination Disney 5K Run/Walk

8:00 a.m. – Falcon’s Fire Golf Course, Kissimmee, FL

December 21: SPIRIT Conference

8:30 a.m. – Hilton Lake Buena Vista, Orlando, FL

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September 2018

Cabi Clothing Party Fundraiser

September 9, 2018 @ 1:00 pm - 4:30 pm
6210 Parima Street, Long Beach, CA 90803, 6210 Parima Street
Long Beach, CA 90803 United States
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Dear Friends and Family (near and far), You are cordially invited to my annual Cabi Clothing Party Fundraiser! We are featuring Cabi’s 2018 Fall Season collection! We will also have fun opportunity drawings and a silent auction! ***The sales commission from the clothing sales and other ticket sales/silent auction proceeds will be donated to the National MPS Society.*** DATE: September 9th ~ It's a Sunday! TIME: 1:00 p.m. – 4:30 p.m. PLACE: 6210 Parima Street, Long Beach, CA 90803 You…

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October 2018

Do It Fore Dan Golf Tournament

October 5, 2018
Moccasin Run Golf Course, 402 Schoff Road
Atglen, PA 19310 United States
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Please join our family as we host the 7th Annual Do It ‘Fore’ Dan Golf Tournament to raise money for medical research seeking cures and treatments for the devastating disease, MPS (Mucopolysaccharidoses). This condition has affected many lives in the tri-state area and around the United States and sadly has taken the lives of many as well.There are seven different types of MPS and our son Dan, had MPS type II or Hunter Syndrome. Dan fought an incredible battle against…

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Post Office Cafe 27th Annual 5K Run & 1K Fun Run

October 20, 2018
Post Office Cafe, 130 W. Main Street
Babylon, NY 11702 United States
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Run for Fun...Race for a Cause! Please join us for the Post Office Cafe's 27th Annual 5k Run & 1K Fun Run! Registration begins 8am. The 1K starts at 9:30am. The 5K starts at 10am. The event is in memory of Mark Lessing, Jr. and his sister Casey Lessing. Both have lost their battle to Sanfilippo Syndrome.

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November 2018

St. Louis Area MPS and ML Family Gathering

November 17, 2018 @ 11:00 am - 2:00 pm
National Museum of Transportation, 2933 Barrett Station Road
St. Louis, MO 63122 United States
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Hosted by the Klenke Family Saturday, November 17, 2018 National Museum of Transportation 2933 Barrett Station Road St. Louis, MO 63122 Join families from throughout the region for lunch and enjoy activities at the museum, including the mini train and rides on the trolley! Click here to view the flyer for additional information!

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Alamo Battle for MPS 5K

November 18, 2018 @ 9:00 am - 5:00 pm
Lady Bird Johnson Park, 10700 Nacogdoches
San Antonio, TX 78217 United States
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The National MPS Society will host a timed 5K run and memorial walk, beginning at 9 am on Sunday, November 18th.  The short memorial walk will begin at 9:10 am. Packet pickup and day of registration will begin at 7:30am the same morning. The race will take place on the Salado Creek trail of Lady Bird Johnson Park in San Antonio, Texas. Pre-registration is $30 for the 5K for timed runners, $25 for walkers. Family or team of four registration…

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March 2019

MPS Race for a Cure

March 1 @ 8:00 am - 5:00 pm

The National MPS Society will host a timed 5K Run and Memorial Walk.  Start time is 10:00 am for the 5k run. The 1 mile memorial walk will begin at 10:15 am and will be open throughout the morning.The run will take place on a paved walkway throughout Napa Valley College. *Leashed dogs are welcome at the event. Picnic! Carnival! Drawing! Prizes! Auction! Live music!  Entertainment from Violet the Clown will follow the awards ceremony!   Pre-registration is $25.00 per…

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Rise Up For MPS

March 2 @ 7:00 pm - 11:00 pm
Midway ISD Performing Arts Center, 800 N. Hewitt Drive
Hewitt, TX 76643 United States
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On March 2nd, 2019 the Jenna Marie Richbourg Endowment will host it’s second fundraising event, Rise Up for MPS, featuring an inspiring concert by the Vocal Majority, a chorus of over 100 men, at the Midway ISD Performing Arts Center! 100% of concert proceeds will go to the National MPS Society, a 4 star charity, to support families affected by MPS.  The funds will be disbursed through the Jenna Marie Richbourg Endowment Fund, created in memory of Jenna to help raise awareness about this rare genetic…

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Raleigh Run for Rare 5k for MPS and ML

March 30 @ 7:00 am - 12:00 pm
Dorothea Dix Park, 2105 Umstead Drive
Raleigh, NC 27603 United States
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The event is Saturday, March 30th at 8:00am. The Raleigh Run for Rare 5K Walk/Run is an event that will benefit the National MPS Society. All funds raised will be used for research of MPS and ML Diseases. Please visit the National MPS Society website here for more details on this wonderful organization. The motivation for this event is shared by the Klein and Schleter Families as their daughter Jennifer suffers from Mucolipidosis Type III.  Please read a little more about Jennifer and her journey with ML.…

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North Carolina Family Courage Picnic

March 30 @ 11:00 am - 1:00 pm

You are cordially invited by the Klein & Schleter Family and the National MPS Society to our Family Picnic! The location will be adjacent to Run Registration. Where: Dorothea Dix Park 2105 Umstead Drive Raleigh, NC 27603 Festivities include (but not limited to): Lunch and Refreshments, Face Painting, Music, and Treats

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May 2019

MPS Charity VIP Silent Auction

May 30 @ 6:00 pm - 9:00 pm
317 East 8th Street New York, NY, 317 East 8th Street
New York, NY 10009 United States
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Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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