Highline Park 21st Street and Chesnut Street Philadelphia, PA Hosted by Penn Medicine Orphan Disease Center Team MPS will be participating in the Million Dollar Bike Ride on May 20th. This event is critical for funding research for MPS and ML, and we need your help!  Whether you come to Philadelphia and ride as part of the team or make a donation toward our $50,000 goal, we are counting on you!  Every dollar we raise is matched up to $50,000! Please…

  The Tippett and Kruse families will host the 4th annual Cooper’s Troopers BBQ on Saturday, June 2 at 4 pm in Littleton, CO. The event celebrates Cooper’s (MPS IVA) Troopers, the family’s support team, prayer warriors and donors, who lift them up as they fight Cooper’s battle with MPS.   

First Annual Toss for Tony Washer Tournament Saturday, June 9th at 2 pm CST Lindenwood Park  3859 Prather Ave. St.Louis, Mo 63109 Please join us as we gather in memory of Antonio "Tony" Willmann.  To celebrate Tony's life, we will be hosting an event with something for everyone.   There will be a washer tournament and raffle for the adults and activities for the kids. Come out to enjoy the park and the company of family and friends. Cook-out style meals will…

  Please join us for one of our cherished regional events this summer on June 24th!  The 8th Annual Concert for the Cure will feature live music, vendors, food trucks and more for a day of fun and entertainment.   This event is family, kid, and dog friendly.  Admission is free for MPS kids and families, as well as for kids under 12.  Donations are accepted. Admission for others will be $20 per ticket or 6 tickets for $100.  Learn all about the…

Saturday, July 14th Northwest Chapel 6700 Rings Rd. Dublin, OH 43016 Join us as we gather and enjoy each other's company. Meet other MPS families and make new friends! There will be something for everyone, including kid-friendly activities.  Please be sure to RSVP to rwojnaro@columbus.rr.com by July 1st and include the name of the child affected by MPS, the type of MPS, their age, and the name of each person attending and their relation to the child affected by MPS. Thank…

The Morquio Conference promotes community education and research, as well as scientific issues the community wishes to address. Families, medical practitioners and researchers are welcome.  July 27-29, 2018 Nemours / Alfred I. duPont Hospital for Children 1600 Rockland Road Wilmington, DE 19803 For more information contact: morquioconference@gmail.com 

This year's symposium is an opportunity for the MPS and related diseases community to share and exchange new information, learn about new breakthroughs in science and medicine, and develop strategies to keep us moving forward. At the symposium, you can expect to see everything from workshops geared toward best practices in MPS care to the latest advances in research from around the globe. The symposium will feature scientific and family focused tracks to meet the needs of all attendees. We…