MPS Events
We have some great events coming up! Click on the title for more information.
October 19: Post Office Cafe 28th Annual 5K Run & 1K Fun Run
9:30 a.m. – Post Office Cafe, Babylon, NY
December 19-20: 33rd Annual National MPS Society Conference
Hilton Lake Buena Vista, Orlando, FL
December 20: Destination Disney 5K Run/Walk
8:00 a.m. – Falcon’s Fire Golf Course, Kissimmee, FL
December 21: SPIRIT Conference
8:30 a.m. – Hilton Lake Buena Vista, Orlando, FL
Events Search and Views Navigation
October 2018
Do It Fore Dan Golf Tournament
Please join our family as we host the 7th Annual Do It ‘Fore’ Dan Golf Tournament to raise money for medical research seeking cures and treatments for the devastating disease, MPS (Mucopolysaccharidoses). This condition has affected many lives in the tri-state area and around the United States and sadly has taken the lives of many as well.There are seven different types of MPS and our son Dan, had MPS type II or Hunter Syndrome. Dan fought an incredible battle against…
Find out more »Post Office Cafe 27th Annual 5K Run & 1K Fun Run
Run for Fun...Race for a Cause! Please join us for the Post Office Cafe's 27th Annual 5k Run & 1K Fun Run! Registration begins 8am. The 1K starts at 9:30am. The 5K starts at 10am. The event is in memory of Mark Lessing, Jr. and his sister Casey Lessing. Both have lost their battle to Sanfilippo Syndrome.
Find out more »November 2018
St. Louis Area MPS and ML Family Gathering
Hosted by the Klenke Family Saturday, November 17, 2018 National Museum of Transportation 2933 Barrett Station Road St. Louis, MO 63122 Join families from throughout the region for lunch and enjoy activities at the museum, including the mini train and rides on the trolley! Click here to view the flyer for additional information!
Find out more »Alamo Battle for MPS 5K
The National MPS Society will host a timed 5K run and memorial walk, beginning at 9 am on Sunday, November 18th. The short memorial walk will begin at 9:10 am. Packet pickup and day of registration will begin at 7:30am the same morning. The race will take place on the Salado Creek trail of Lady Bird Johnson Park in San Antonio, Texas. Pre-registration is $30 for the 5K for timed runners, $25 for walkers. Family or team of four registration…
Find out more »March 2019
MPS Race for a Cure
The National MPS Society will host a timed 5K Run and Memorial Walk. Start time is 10:00 am for the 5k run. The 1 mile memorial walk will begin at 10:15 am and will be open throughout the morning.The run will take place on a paved walkway throughout Napa Valley College. *Leashed dogs are welcome at the event. Picnic! Carnival! Drawing! Prizes! Auction! Live music! Entertainment from Violet the Clown will follow the awards ceremony! Pre-registration is $25.00 per…
Find out more »Rise Up For MPS
On March 2nd, 2019 the Jenna Marie Richbourg Endowment will host it’s second fundraising event, Rise Up for MPS, featuring an inspiring concert by the Vocal Majority, a chorus of over 100 men, at the Midway ISD Performing Arts Center! 100% of concert proceeds will go to the National MPS Society, a 4 star charity, to support families affected by MPS. The funds will be disbursed through the Jenna Marie Richbourg Endowment Fund, created in memory of Jenna to help raise awareness about this rare genetic…
Find out more »Raleigh Run for Rare 5k for MPS and ML
The event is Saturday, March 30th at 8:00am. The Raleigh Run for Rare 5K Walk/Run is an event that will benefit the National MPS Society. All funds raised will be used for research of MPS and ML Diseases. Please visit the National MPS Society website here for more details on this wonderful organization. The motivation for this event is shared by the Klein and Schleter Families as their daughter Jennifer suffers from Mucolipidosis Type III. Please read a little more about Jennifer and her journey with ML.…
Find out more »North Carolina Family Courage Picnic
You are cordially invited by the Klein & Schleter Family and the National MPS Society to our Family Picnic! The location will be adjacent to Run Registration. Where: Dorothea Dix Park 2105 Umstead Drive Raleigh, NC 27603 Festivities include (but not limited to): Lunch and Refreshments, Face Painting, Music, and Treats
Find out more »May 2019
October 2019
Post Office Cafe 28th Annual 5K Run & 1K Fun Run
Run for Fun...Race for a Cause! Please join us for the Post Office Cafe's 28th Annual 5k Run & 1K Fun Run! A pre-race party kicks off the festivities Friday Night, October 18th from 4:00pm-8:00pm. Runners can pick up their T-Shirts and Race Numbers and enjoy a complimentary buffet and drink! Same day race registration begins 8:00am on Saturday, October 19. The 1K fun run starts at 9:30am. The 5K starts at 10:00am. The event is in memory of Mark…
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