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July 2018

Ohio MPS Family Gathering 2018

July 14, 2018 @ 12:00 pm - 4:00 pm

Saturday, July 14th Northwest Chapel 6700 Rings Rd. Dublin, OH 43016 Join us as we gather and enjoy each other's company. Meet other MPS families and make new friends! There will be something for everyone, including kid-friendly activities.  Please be sure to RSVP to [email protected] by July 1st and include the name of the child affected by MPS, the type of MPS, their age, and the name of each person attending and their relation to the child affected by MPS. Thank…

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Morquio Conference

July 27, 2018 - July 29, 2018

The Morquio Conference promotes community education and research, as well as scientific issues the community wishes to address. Families, medical practitioners and researchers are welcome.  July 27-29, 2018 Nemours / Alfred I. duPont Hospital for Children 1600 Rockland Road Wilmington, DE 19803 For more information contact: [email protected] 

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August 2018

15th International Symposium on MPS and Related Diseases

August 2, 2018 - August 4, 2018

This year's symposium is an opportunity for the MPS and related diseases community to share and exchange new information, learn about new breakthroughs in science and medicine, and develop strategies to keep us moving forward. At the symposium, you can expect to see everything from workshops geared toward best practices in MPS care to the latest advances in research from around the globe. The symposium will feature scientific and family focused tracks to meet the needs of all attendees. We…

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San Diego Superhero 5K Run and 1 Mile Memorial Walk

August 5, 2018 @ 8:00 am - 12:00 pm

Sunday, August 5th  8 am PST Spanish Landing Park 3900 N. Harbor Drive San Diego, CA 92101   National MPS Society will host a run and walk to celebrate our superheroes and conclude our conference in San Diego!   Advance registration now open! Create a team for fundraising, register individually, or just come to enjoy the event and cheer others on.   The timed 5K run will begin at 8:15 am PDT, and the 1 mile memorial walk will begin shortly…

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September 2018

Cabi Clothing Party Fundraiser

September 9, 2018 @ 1:00 pm - 4:30 pm
6210 Parima Street, Long Beach, CA 90803, 6210 Parima Street
Long Beach, CA 90803 United States
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Dear Friends and Family (near and far), You are cordially invited to my annual Cabi Clothing Party Fundraiser! We are featuring Cabi’s 2018 Fall Season collection! We will also have fun opportunity drawings and a silent auction! ***The sales commission from the clothing sales and other ticket sales/silent auction proceeds will be donated to the National MPS Society.*** DATE: September 9th ~ It's a Sunday! TIME: 1:00 p.m. – 4:30 p.m. PLACE: 6210 Parima Street, Long Beach, CA 90803 You…

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March 2020

Virtual Raleigh Run for Rare

March 28 @ 8:00 am - 8:00 pm
NC United States

Though we cannot join in person for the 2020 Raleigh Run for Rare, we encourage families to get outside on March 28th and move to increase awareness for MPS and ML! With your help, we can raise dollars for our mission to support families and fund research leading to cures. Families everywhere now have the chance to participate: REGISTER: Visit bit.ly/raleighrun2020 to register for the virtual 5K run or 1 Mile Walk PARTICIPATE: On March 28 complete a 1 mile walk or 5K run around your neighborhood with your family or run on…

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June 2020

Million Dollar Bike Ride

June 13

The Million Dollar Bike Ride is an event hosted by the University of Pennsylvania on June 13. This year, the event is virtual! Register to ride 13, 34, or 72 miles from home. Together, Team MPS has set a goal of raising $30,000 for rare disease research. All funding up to $30,000 will be matched by the Orphan Disease Center at the University of Pennsylvania.  Participation is easy! Register Here: milliondollarbikeride.org Donate Here: bit.ly/MDBR2020 Tag your training on social media!…

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October 2020

Do it Fore Dan Golf Tournament

October 2 @ 8:00 am - 5:00 pm

The ninth annual "Do it Fore Dan!"  Beat MPS Golf outing is virtual! The Miller family is excited to expand this opportunity to National MPS Society members across the country. This annual event is hosted in honor of Dan Miller who fought an incredible battle against MPS II for a little over 19 years. Please join the Miller Family in their efforts to raise awareness and funding for MPS II research. Participation is easy: play a round of golf, by yourself…

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The Post Office Cafe 29th Race for MPS (a virtual event)

October 17

Run for Fun, Race for a Cause! Please join us for the Post Office Cafe's 29th Annual SK Run & 1 K Fun Run! In lieu of an in-person event, this year's run will be virtual! This is the 20th Annual National MPS Society Run/Walk, and PO's 29th Annual SK & 1 K Fun Run. This event will take place across the nation to raise awareness and funds for the National MPS Society. Join us on Saturday, October 17 as…

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The Big Bake for MPS and ML

October 30 - November 7

Join us for the National MPS Society's first Bake Off and Bake Sale. Click here for more information and to sign up!

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We have some great events coming up! Click on the title for more information.

October 17, 2020: Post Office Cafe 29th Race for MPS

Virtual

October 30 – November 7, 2020: The Big Bake for MPS and ML

Virtual

May 15, 2021: National MPS Society Maritime Gala

Corinthian Yacht Club, Tiburon, CA

June 24-26, 2021: National MPS Society Family Conference

Sheraton Music City, Nashville, TN

June 26, 2021: Nashville Rock and Roll 5K Run and 1 Mile Walk

7:30 a.m. – Shelby Park, Nashville, TN

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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