MPS Events

We have some great events coming up! Click on the title for more information.

March 28: Raleigh Run for Rare

8:00 a.m. – Dorothea Dix Park, Raleigh, NC

May 2: Napa MPS Golf Tournament

8:00 a.m. – Napa Golf Course at Kennedy Park, Napa, CA

May 3: Napa Race for a Cure

10:00 a.m. – Kennedy Park, Napa, CA

May 16: National MPS Society Maritime Gala

7:00 p.m. – Corinthian Yacht Club, Tiburon, CA

June 13: Million Dollar Bike Ride

7:30 a.m.: University of Pennsylvania, Philadelphia, PA

July 16-18: National MPS Society Family Conference

Sheraton Music City, Nashville, TN

July 18: Nashville Rock and Roll 5K Run and 1 Mile Walk

7:30 a.m. – Shelby Park, Nashville, TN

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May 2018

Kendra Gives Back Party- Houston

May 15, 2018 @ 6:00 pm - 8:00 pm

Friends and families: Join us on Tuesday, May 15th 6 pm - 8 pm KENDRA SCOTT IN CITY CENTRE 816 Town and Country Blvd #131 Houston, TX 77024 Enjoy sips, sweets, and jewels!   20% of sales during this event benefits National MPS Society Unable to attend?  You can still contribute! Place a phone order during the 6-8 pm CST time, and we will ship your order to you at no additional cost.  (713) 965-4115 What better way to show your…

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Million Dollar Bike Ride

May 20, 2018 @ 7:30 am - 2:00 pm
$25.00

Highline Park 21st Street and Chesnut Street Philadelphia, PA Hosted by Penn Medicine Orphan Disease Center Team MPS will be participating in the Million Dollar Bike Ride on May 20th. This event is critical for funding research for MPS and ML, and we need your help!  Whether you come to Philadelphia and ride as part of the team or make a donation toward our $50,000 goal, we are counting on you!  Every dollar we raise is matched up to $50,000! Please…

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June 2018

4th Annual Cooper’s Troopers BBQ

June 2, 2018 @ 4:00 pm - 8:00 pm

  The Tippett and Kruse families will host the 4th annual Cooper’s Troopers BBQ on Saturday, June 2 at 4 pm in Littleton, CO. The event celebrates Cooper’s (MPS IVA) Troopers, the family’s support team, prayer warriors and donors, who lift them up as they fight Cooper’s battle with MPS.   

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First Annual Toss for Tony

June 9, 2018 @ 2:00 pm - 7:00 pm

First Annual Toss for Tony Washer Tournament Saturday, June 9th at 2 pm CST Lindenwood Park  3859 Prather Ave. St.Louis, Mo 63109 Please join us as we gather in memory of Antonio "Tony" Willmann.  To celebrate Tony's life, we will be hosting an event with something for everyone.   There will be a washer tournament and raffle for the adults and activities for the kids. Come out to enjoy the park and the company of family and friends. Cook-out style meals will…

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8th Annual Concert for the Cure

June 24, 2018 @ 10:00 am - 11:00 pm

  Please join us for one of our cherished regional events this summer on June 24th!  The 8th Annual Concert for the Cure will feature live music, vendors, food trucks and more for a day of fun and entertainment.   This event is family, kid, and dog friendly.  Admission is free for MPS kids and families, as well as for kids under 12.  Donations are accepted. Admission for others will be $20 per ticket or 6 tickets for $100.  Learn all about the…

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July 2018

Ohio MPS Family Gathering 2018

July 14, 2018 @ 12:00 pm - 4:00 pm

Saturday, July 14th Northwest Chapel 6700 Rings Rd. Dublin, OH 43016 Join us as we gather and enjoy each other's company. Meet other MPS families and make new friends! There will be something for everyone, including kid-friendly activities.  Please be sure to RSVP to rwojnaro@columbus.rr.com by July 1st and include the name of the child affected by MPS, the type of MPS, their age, and the name of each person attending and their relation to the child affected by MPS. Thank…

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Morquio Conference

July 27, 2018 - July 29, 2018

The Morquio Conference promotes community education and research, as well as scientific issues the community wishes to address. Families, medical practitioners and researchers are welcome.  July 27-29, 2018 Nemours / Alfred I. duPont Hospital for Children 1600 Rockland Road Wilmington, DE 19803 For more information contact: morquioconference@gmail.com 

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August 2018

15th International Symposium on MPS and Related Diseases

August 2, 2018 - August 4, 2018

This year's symposium is an opportunity for the MPS and related diseases community to share and exchange new information, learn about new breakthroughs in science and medicine, and develop strategies to keep us moving forward. At the symposium, you can expect to see everything from workshops geared toward best practices in MPS care to the latest advances in research from around the globe. The symposium will feature scientific and family focused tracks to meet the needs of all attendees. We…

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San Diego Superhero 5K Run and 1 Mile Memorial Walk

August 5, 2018 @ 8:00 am - 12:00 pm

Sunday, August 5th  8 am PST Spanish Landing Park 3900 N. Harbor Drive San Diego, CA 92101   National MPS Society will host a run and walk to celebrate our superheroes and conclude our conference in San Diego!   Advance registration now open! Create a team for fundraising, register individually, or just come to enjoy the event and cheer others on.   The timed 5K run will begin at 8:15 am PDT, and the 1 mile memorial walk will begin shortly…

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September 2018

Cabi Clothing Party Fundraiser

September 9, 2018 @ 1:00 pm - 4:30 pm
6210 Parima Street, Long Beach, CA 90803, 6210 Parima Street
Long Beach, CA 90803 United States
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Dear Friends and Family (near and far), You are cordially invited to my annual Cabi Clothing Party Fundraiser! We are featuring Cabi’s 2018 Fall Season collection! We will also have fun opportunity drawings and a silent auction! ***The sales commission from the clothing sales and other ticket sales/silent auction proceeds will be donated to the National MPS Society.*** DATE: September 9th ~ It's a Sunday! TIME: 1:00 p.m. – 4:30 p.m. PLACE: 6210 Parima Street, Long Beach, CA 90803 You…

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The National MPS Society exists to cure, support and advocate for MPS and ML.

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