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June 2020

Million Dollar Bike Ride

June 13, 2020

The Million Dollar Bike Ride is an event hosted by the University of Pennsylvania on June 13. This year, the event is virtual! Register to ride 13, 34, or 72 miles from home. Together, Team MPS has set a goal of raising $30,000 for rare disease research. All funding up to $30,000 will be matched by the Orphan Disease Center at the University of Pennsylvania.  Participation is easy! Register Here: milliondollarbikeride.org Donate Here: bit.ly/MDBR2020 Tag your training on social media!…

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October 2020

Do it Fore Dan Golf Tournament

October 2, 2020 @ 8:00 am - 5:00 pm

The ninth annual "Do it Fore Dan!"  Beat MPS Golf outing is virtual! The Miller family is excited to expand this opportunity to National MPS Society members across the country. This annual event is hosted in honor of Dan Miller who fought an incredible battle against MPS II for a little over 19 years. Please join the Miller Family in their efforts to raise awareness and funding for MPS II research. Participation is easy: play a round of golf, by yourself…

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The Post Office Cafe 29th Race for MPS (a virtual event)

October 17, 2020

Run for Fun, Race for a Cause! Please join us for the Post Office Cafe's 29th Annual SK Run & 1 K Fun Run! In lieu of an in-person event, this year's run will be virtual! This is the 20th Annual National MPS Society Run/Walk, and PO's 29th Annual SK & 1 K Fun Run. This event will take place across the nation to raise awareness and funds for the National MPS Society. Join us on Saturday, October 17 as…

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The Big Bake for MPS and ML

October 30, 2020 - November 7, 2020

Join us for the National MPS Society's first Bake Off and Bake Sale. Click here for more information and to sign up!

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March 2021

Virtual Raleigh Run for Rare

March 27, 2021

March 27, 2021 Join us for the 2021 Virtual Raleigh Run for Rare! Participate in a 5K Run or 1 Mile walk from in your neighborhood. Take a photo and share your results, winners will be chosen from each age group. Click here for more information and to register for the event. 

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May 2021

Virtual MPS Napa Race for a Cure

May 2, 2021

The National MPS Society's Napa MPS Race for a Cure is here! Join us for our 5th Annual Event as we raise funds for the mission of the National MPS Society. Although COVID restrictions prevent us from participating in person, we'll join together for this incredible event virtually. Register to participate, and on May 2nd MOVE to increase awareness for MPS and ML! With your help, we can still raise critical dollars to support families and fund research for cures. Individuals across the…

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National MPS Society Virtual Gala, 2021

May 15, 2021 @ 7:30 pm - 9:30 pm

Join us for the National MPS Society's "A Night Off Broadway" virtual Gala in celebration on MPS Awareness Day.  This spectacular evening will feature performances from Jersey Boys, Mamma Mia, and Beautiful, alongside a live and silent auction. We'll honor our MPS and ML heroes, and celebrate this special day for our community.  Funds raised at this event will directly benefit the mission of the National MPS Society, supporting families and advancing research.  Follow the links below to participate: Visit…

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June 2021

35th Annual National MPS Society Family Conference, 2021

June 19, 2021 - June 27, 2021
Virtual United States

SAVE THE DATE! -- Join us June 19-20 and 26-27 for our 35th Annual Family Conference!   Taking place virtually, this conference will focus around the theme of remaining connected and the overlap within diagnoses, but highlight and recognize the uniqueness of each through individualized sessions for each syndrome type. The conference features clinicians, scientists, researchers, FDA representatives, advocacy, family support, and much more. Registration information coming soon!

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October 2021

Post Office Cafe’s 30th Annual 5K Run & 1K Fun Run

October 16, 2021 @ 9:30 am - 12:00 pm
Post Office Cafe, 130 W. Main Street
Babylon, NY 11702 United States
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This year is the 19th Annual National MPS Society Run/Walk, and PO's 30th Annual SK & 1 K Fun Run. This event will take place in many cities across the nation to raise awareness and funds for the National MPS Society. In our community, the Walk/Run will be held at the Post Office Cafe in celebration of Mark and Casey Lessing. In 2010, Mark lost his 20 year battle with the disorder MPS IIIA. His sister Casey passed away July…

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The Big Bake for MPS and ML

October 29, 2021 - December 31, 2021

 Save the date! The Big Bake for MPS and ML will begin on October 29! Whether you are a professional baker or a professional faker, we need you! There are many ways to participate, here are a few ideas to get you started: Ask a local bakery or coffee shop to donate a portion of proceeds from one or more items in honor of this fundraiser. Post your baked goods on social media, ask for donations or auction to the…

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The National MPS Society exists to cure, support and advocate for MPS and ML.

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