We have some great events coming up! Click on the title for more information.

March 28: Raleigh Run for Rare

8:00 a.m. – Dorothea Dix Park, Raleigh, NC

May 2: Napa MPS Golf Tournament

8:00 a.m. – Napa Golf Course at Kennedy Park, Napa, CA

May 3: Napa Race for a Cure

10:00 a.m. – Kennedy Park, Napa, CA

May 16: National MPS Society Maritime Gala

7:00 p.m. – Corinthian Yacht Club, Tiburon, CA

June 13: Million Dollar Bike Ride

7:30 a.m.: University of Pennsylvania, Philadelphia, PA

July 16-18: National MPS Society Family Conference

Sheraton Music City, Nashville, TN

July 18: Nashville Rock and Roll 5K Run and 1 Mile Walk

7:30 a.m. – Shelby Park, Nashville, TN

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SPIRIT Conference

December 21, 2019 @ 8:30 am - 3:00 pm

The National MPS Society invites you to attend a conference specific for adults with MPS and ML, ages 18 and up: “Finding Our SPIRIT.” We have worked with the Adult Resource Committee, spoken with you, and reviewed evaluations to determine things that are most important to you. Through this, we incorporated formal meeting time and time for you to spend with your peers on your topics of interest. The SPIRIT conference will take place on Saturday, December 21 from 8:30am – 3:00pm.


December 21, 2019
8:30 am - 3:00 pm


Hilton Lake Buena Vista
1751 Hotel Plaza Blvd
Lake Buena Vista, FL 32830 United States


Leslie Urdaneta

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs