We have some great events coming up! Click on the title for more information.

October 19: Post Office Cafe 28th Annual 5K Run & 1K Fun Run

9:30 a.m. – Post Office Cafe, Babylon, NY

December 19-20: 33rd Annual National MPS Society Conference

Hilton Lake Buena Vista, Orlando, FL

December 20: Destination Disney 5K Run/Walk

8:00 a.m. – Falcon’s Fire Golf Course, Kissimmee, FL

December 21: SPIRIT Conference

8:30 a.m. – Hilton Lake Buena Vista, Orlando, FL

Loading Events

« All Events

  • This event has passed.

Raleigh Run for Rare 5k for MPS and ML

March 30 @ 7:00 am - 12:00 pm

The event is Saturday, March 30th at 8:00am. The Raleigh Run for Rare 5K Walk/Run is an event that will benefit the National MPS Society. All funds raised will be used for research of MPS and ML Diseases. Please visit the National MPS Society website here for more details on this wonderful organization.

The motivation for this event is shared by the Klein and Schleter Families as their daughter Jennifer suffers from Mucolipidosis Type III.  Please read a little more about Jennifer and her journey with ML.

The Society has one office that serves our Nation and it is located in the Raleigh Durham Area!  The Society is the national support for families and children affected by Mucopolysaccharidosis (MPS) and Mucolipidosis (ML). The Society advocates through efforts in Research, Family Assistance, Federal Advocacy, Newborn Screening, and Educational and Fundraising Committees.

Details

Date:
March 30
Time:
7:00 am - 12:00 pm
Website:
http://mpsrunnc.com/

Organizer

National MPS Society, Inc
Phone:
9198060101
Email:
brian@mpssociety.org
Website:
www.MPSSociety.org

Venue

Dorothea Dix Park
2105 Umstead Drive
Raleigh, NC 27603 United States
+ Google Map

Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

Contact Us Family Support Programs