This year is the 19th Annual National MPS Society Run/Walk, and PO’s 30th Annual SK & 1 K Fun Run. This event will take place in many cities across the nation to raise awareness and funds for the National MPS Society.

In our community, the Walk/Run will be held at the Post Office Cafe in celebration of Mark and Casey Lessing. In 2010, Mark lost his 20 year battle with the disorder MPS IIIA. His sister Casey passed away July 2016 at the age of 24. MPS and related diseases are genetic disorders that affect major organs in the body, including the respiratory system, heart, bones, and nervous system. Affecting mostly children, it is caused by the body’s inability to produce certain enzymes. There are hundreds of children around the country waiting for a treatment and eventually a cure for these rare, progressive, and deadly diseases.

The National MPS Society’s mission is to provide support for individuals and their families affected by MPS or ML. Our goals are to increase public and professional awareness and to support research. The Society’s ultimate goal is to find a cure for MPS disorders.

This in-person event will be held on Saturday, October 16 in Babylon, NY. 

Click here to register for the race and for more information! 

Click here to view the event brochure!