We have some great events coming up! Click on the title for more information.

March 28: Virtual Raleigh Run for Rare

April 18: First Annual Keller’s 5K for MPS

This event has been rescheduled for Fall 2020

May 3: Napa Race for a Cure

This event has been rescheduled for Fall 2020

May 16: National MPS Society Maritime Gala

This event has been rescheduled for May 15, 2021.

June 13: Million Dollar Bike Ride

7:30 a.m.: University of Pennsylvania, Philadelphia, PA

July 16-18: National MPS Society Family Conference

Sheraton Music City, Nashville, TN

July 18: Nashville Rock and Roll 5K Run and 1 Mile Walk

7:30 a.m. – Shelby Park, Nashville, TN

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Cabi Clothing Party Fundraiser

September 9, 2018 @ 1:00 pm - 4:30 pm

Dear Friends and Family (near and far),

You are cordially invited to my annual Cabi Clothing Party Fundraiser!

We are featuring Cabi’s 2018 Fall Season collection!

We will also have fun opportunity drawings and a silent auction!

***The sales commission from the clothing sales and other ticket sales/silent auction proceeds will be donated to the National MPS Society.***

DATE: September 9th ~ It’s a Sunday!

TIME: 1:00 p.m. – 4:30 p.m.

PLACE: 6210 Parima Street, Long Beach, CA 90803

You may also participate from afar by shopping with Dawn Watkins at www.dawnwatkins.cabionline.com

Come enjoy fashion, friends, food, opportunity drawings and a silent auction ~ all while raising money for a cause dear to my heart ~ The National MPS Society! We want to find a cure for MPS (Mucopolysaccharidoses) and work to improve Michelle’s life and other loved ones affected by MPS.

I look forward to hosting this event each year for all of us. I love opening my home to you to stay connected and build memories! I look forward to sharing my experiences this year in being a patient advocate for the rare disease community and the exciting advancements in the discovery and development of therapies/cures for MPS! There is so much more innovation, investment and interest in finding a cure for MPS than 10 year ago due to the efforts of many! We have been on this journey together and I thank you for your support! Together we have raised thousands of dollars and together are making a huge difference for the MPS Community. Giving up is not an option!

Michelle’s journey from diagnosis at 1 year to her bone marrow transplant at 20 months old to her spinal decompression surgery at 10 years old to living with MPS1 are shared at www.caringbridge.com/visit/michellehopkins

Please also check out the National MPS Society website at www.mpssociety.org

Hope to see you there!

Love,

Lynn

 

Details

Date:
September 9, 2018
Time:
1:00 pm - 4:30 pm

Venue

6210 Parima Street, Long Beach, CA 90803
6210 Parima Street
Long Beach, CA 90803 United States
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Our Mission

The National MPS Society exists to cure, support and advocate for MPS and ML.

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