We have some great events coming up! Click on the title for more information.
8:00 a.m. – Dorothea Dix Park, Raleigh, NC
May 2: Napa MPS Golf Tournament
8:00 a.m. – Napa Golf Course at Kennedy Park, Napa, CA
10:00 a.m. – Kennedy Park, Napa, CA
May 16: National MPS Society Maritime Gala
7:00 p.m. – Corinthian Yacht Club, Tiburon, CA
7:30 a.m.: University of Pennsylvania, Philadelphia, PA
July 16-18: National MPS Society Family Conference
Sheraton Music City, Nashville, TN
7:30 a.m. – Shelby Park, Nashville, TN
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33rd Annual National MPS Society Family Conference
December 19, 2019 @ 1:00 pm - December 20, 2019 @ 9:00 pm
Our members have shared that research, management of symptoms, and new treatments are most important. Speakers on Thursday and Friday will focus on these topics, with additional material covered in concurrent sessions on Friday afternoon. Syndrome-specific breakout sessions will take place Thursday night. On Friday evening, families are invited to a banquet to celebrate the 45th anniversary of the National MPS Society! There’s no dress code for this event; you’re welcome to dress up in your finest party attire or be relaxed in shorts and flip flops.
The weekend will be free to explore the many parks in Walt Disney World, catch up with old friends and meet new families. Society members are welcome to join the board of directors meeting at 8:00 a.m. on Thursday, Dec. 19.
Since Disney conferences occur only once every five years, you really must bring your family! To help you with this, there is no registration fee for individuals with MPS or ML, and complimentary childcare will be provided Thursday and Friday for the educational and breakout sessions. In addition to the many activities available at Walt Disney World, the Lake Buena Vista area is home to many theme parks and attractions such as Disney Springs, Busch Gardens of Tampa, Cypress Gardens, Universal Studios, and Sea World.
Don’t miss out on making your own magical moments at Walt Disney World and helping us celebrate our 45 years of achievements! Please join us by attending the annual meeting of the National MPS Society to learn about the activities of the Society. Call Leslie Urdaneta at 919.806.0101 with questions or send an e-mail to email@example.com.
Hotel and conference reservation deadlines are November 26. But remember, the room block may fill up beforehand, so register early!