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2017 Ohio MPS Gathering Candyland Party


Start Date: July 8, 2017
End Date: July 8, 2017

Almost each year for the last 16 years, Matt and Rachel Wojnarowski have hosted the annual Ohio MPS Gathering- a regional gathering for families who have children affected by MPS/ML diseases, the same disease as their sweet girl, Taylor.

A pasta lunch buffet will be served as well as the usual fun and games available each year, with a couple new surprises.

Come prepared to have a great time with your own family and to enjoy a day of celebration with other MPS families!

You MUST RSVP using the Facebook Event page ( or via email at We sincerely appreciate reservations before June 25, 2017 so that preparations can be made.

MPS BBQ- Long Island, NY


Start Date: July 29, 2017
End Date: July 29, 2017

JULY 29, 2017

Please join us at The O’Connor Home

20 Lakewood Avenue Ronkonkoma, NY 11779    

Feel free to bring your favorite dish to share!

BBQ starts at 2pm with no designated end time. We will have a character and a few other surprises for the kiddos. Mostly we’re here just to hang out and enjoy a nice afternoon with others who know!

Please call or text Danielle O’Connor with any questions.


Annual Family Conference


Start Date: August 3, 2017
End Date: August 5, 2017

For more information and to register, visit our conference site.

5th Annual Cross Creek Golf for MPS Charity Tournament


Start Date: October 1, 2017
End Date: October 1, 2017

Hosted by William Bagwell

National MPS Gala


Start Date: October 14, 2017
End Date: October 14, 2017

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