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The Storytelling Series: Identifying Your Story
Join us via Zoom for a free, four-part webinar series created to support individuals and families in the rare disease community as they explore the power of storytelling as a tool for connection, advocacy, and change. Whether you are a patient, caregiver, sibling, advocate, or ally, this series is designed to help you find your voice, honor your lived experience, and understand when and how to share your story in ways that feel empowering and impactful.
In this weeks webinar, we’ll introduce the concept of storytelling; what is it, and why is it important? Then, we will look at how to identify our own unique stories, determine which ones are worth sharing,, and hear from special guest speaker, Laura King Edwards, author of Run to the Light, about her storytelling journey in the rare disease community.