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Latest News

Lucas’s Legacy

Lucas was the youngest of four children. From the start, he stood out—not just as the baby of the family, but as the…

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Dr. Matthew Ellinwood to Transition Out of CSO Role in Early Spring 2025

From Terri Klein, President & CEO: Over four years ago, Dr. Matthew Ellinwood came to work side-by-side with…

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Benji: Strong, Confident, and Self-Assured

Benji C. is a strong, confident, self-assured, loud, and determined 8-year-old with MPS I. When Benji was a baby,…

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