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Latest News

National MPS Society Welcomes Sharon King as Chief Operating Officer (COO)

The National MPS Society is delighted to announce that Sharon King has joined the team as our inaugural Chief…

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The Princess of the Family: Sebin’s Story

Sebin, the third of four siblings, has spent nearly her entire life in the hospital, including time in the NICU and…

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Waiting for a Diagnosis for More Than 30 Years: Dana’s Story

“I was misdiagnosed at age seven with Spondyloepiphyseal dysplasia after early signs of skeletal…

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