Scarlett is a bright, happy, brave, and resilient 3-year old with a heart full of love (and pink sparkles!). A carnival and boardwalk enthusiast at her core, Scarlett loves rides (the swings specifically), ice cream, and winning squishmellows. She loves arts and crafts with her Grandma Joni and dance parties with Daddy.
Although Scarlett was diagnosed with Morquio Syndrome (MPS IVA) on April 30th, 2024, she continues to amaze everyone around her with her strength and spirit! Despite the challenges that she may face in the future, Scarlett has a contagious joy and an unyielding determination that is truly an inspiration to all that she meets, even at 3 years old! Her journey, so far, has brought together our community of family, friends, and medical professionals who have and will continue to support her every step of the way!
As her parents, Eric and I are deeply committed to raising awareness about Morquio Syndrome and helping to fund the research that will find a cure! Scarlett absolutely amazes us everyday and we are unbelievably proud of the courage and resilience in she has shown in every challenging moment.
Though this journey is still new to us, and this journey is unique, Scarlett continues to grow, thrive, and spread love to everyone she meets!
Please consider supporting the National MPS Society which works tirelessly to fund research and provide resources for families affected by Morquio Syndrome. Your generosity can help make a difference in the lives of children, like Scarlett, and countless others.
TOGETHER, we can bring hope and progress to those facing rare and complex health challenges and one day, I fully believe, we will be able to say, WE HAVE A CURE.
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