Alegend Bridges

Bio

I am the mother of my 17 month old son Alegend. I am trying to make it to all conferences. Regarding his condition of hunters syndrom. Alegend is a very special boy. And means the world to me.

Story

Alegend was diagnosed mps 2. Alegend was originally born in Orlando flordia. But due to doctors not understated why. He had different problems we moved to Syracuse. Ny. Who. Diagnosed. Him. And. It has been a difficult thing to take in. For our family. We are. Trying to do a trial for a cure for Alegend. In Manchester New England. Alegend has infusions every week ; Along with multiple issues that. If we can do the clinical trial. And it succeeds. It’s a cure. For our Boy . 🙏Alegend has. Several sisters and brothers and he is the only one like this. Anything helps.

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