I am the mother of my 17 month old son Alegend. I am trying to make it to all conferences. Regarding his condition of hunters syndrom. Alegend is a very special boy. And means the world to me.
Alegend was born in Orlando Florida and since then it has been one problem after another with him andt we could not find the reasoning for it. Alegend has numerous of issues and me and his 4 siblings moved to Syracuse ny due to this and we found out that my baby boy has mps2 and it has changed me and my families life. And has been beyond stressful Alegend is getting infusions every week and I pray this nightmare can go away or help
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