2020 Virtual Family Conference

On September 11-12th, we will be hosting the 34th Annual Family Conference, virtually! This one-of-a-kind event will include many components of our traditional conferences, plus unique interactive experiences in a robust virtual environment. On Friday, September 11th, we will host evening breakout sessions and family tributes. On Saturday, September 12th, we will provide full-day conference sessions including general sessions, care management, science and industry updates, and a full day of Camp Courage virtual activities for kids.

Registration fees: 
Members – $35/Family 
Professionals – $50/Person

(If you are in need of financial assistance for registration, please email [email protected]rg or call the Society at 919-806-0101)

Registrants will receive a confirmation email, followed by a separate email with instructions to log into the virtual conference closer to the event.

September 11-12, 2020

Our virtual format will provide an easy way for individuals, families, scientists, and industry experts to network from across the globe. Many of our families have not had the opportunity to attend a conference, and we hope this platform will provide you with a gateway to access support and scientific information.

Please do not miss out! Highlights will include:

  • Syndrome-specific breakout sessions
  • Connection-based breakout sessions
  • Keynote Speaker
  • COVID-19 updates for our Patient Population
  • Visionary Award Recipient
  • Science and Industry updates
  • Care Management
  • Newborn Screening Advocacy
  • Fundraising in a Virtual Climate
  • Camp Courage – Online Activities for Children
  • Question and Answer sessions within each topic
  • Meet the Sponsors with online booths
  • Online shopping in the logo store

Register here, or for more information please email [email protected] or call 919-806-0101.