2019 Annual Report
With a nod to our 45 year history, the 2019 Annual Report outlines the amazing work of our committees, and highlights key efforts in fundraising, research, and support over the past year.
Research Grants Available for MPS II and MPS IV. Letter of Intent due August 31st.
This is a second round of funding for the 2020 Society Research Program.
2020 Continuing Education Scholarship Recipients
Congratulations to all of this year's recipients! We're proud to share their stories and support their journeys.
A Quilt of Gratitude & Remembrance
This beautiful quilt represents over 20 years of love and commitment to an organization we believe really helps families through the entire MPS journey.
National MPS Society Names Dr. Matthew Ellinwood CSO
The National MPS Society is pleased to announce the hiring of its inaugural Chief Scientific Officer (CSO), N. Matthew Ellinwood, D.V.M. Ph.D.
Mucolipidosis II, II/III and III a/b linked with sleep-disordered breathing
For years, families have recognized sleeping disorders are manifestations of Mucolipidosis (ML) II, II/III and III a/b. Still, there have been limited studies conducted and limited objective data. A recent longitudinal study out of Paris, France has now provided new insights around sleep-disordered breathing. Patients of the Lysosomal Disease Center of Neckar Hospital were studied … Continued
Research Update: MPS I Corneal Gene Therapy
Current Study demonstrates potential to provide treatment to both prevent and reverse blindness for individuals with MPS I
Million Dollar Bike Ride
DOUBLE your donation for research! All donations up to $30K will be matched dollar for dollar for our June 13th virtual event.
Help us Raise $45,000 for our Families
Help us Raise $45,000 for International MPS Awareness Day! Join the National MPS Society as we approach International MPS Awareness Day – May 15, 2020. This year, as we celebrate 45 years of serving families, we hope to raise $45,000 in 45 days for our Family Support programs. These programs provide access to critical resources … Continued
2020 Events
We have events on each coast and in between to raise money to support families diagnosed with MPS and ML, please join us at a few!