2019 Annual Report

With a nod to our 45 year history, the 2019 Annual Report outlines the amazing work of our committees, and highlights key efforts in fundraising, research, and support over the past year.

A Quilt of Gratitude & Remembrance

This beautiful quilt represents over 20 years of love and commitment to an organization we believe really helps families through the entire MPS journey.

Mucolipidosis II, II/III and III a/b linked with sleep-disordered breathing

For years, families have recognized sleeping disorders are manifestations of Mucolipidosis (ML) II, II/III and III a/b. Still, there have been limited studies conducted and limited objective data. A recent longitudinal study out of Paris, France has now provided new insights around sleep-disordered breathing. Patients of the Lysosomal Disease Center of Neckar Hospital were studied … Continued

Million Dollar Bike Ride

DOUBLE your donation for research! All donations up to $30K will be matched dollar for dollar for our June 13th virtual event.

Help us Raise $45,000 for our Families

Help us Raise $45,000 for International MPS Awareness Day! Join the National MPS Society as we approach International MPS Awareness Day – May 15, 2020. This year, as we celebrate 45 years of serving families, we hope to raise $45,000 in 45 days for our Family Support programs. These programs provide access to critical resources … Continued

2020 Events

We have events on each coast and in between to raise money to support families diagnosed with MPS and ML, please join us at a few!