A Quilt of Gratitude & Remembrance

This beautiful quilt represents over 20 years of love and commitment to an organization we believe really helps families through the entire MPS journey.

Mucolipidosis II, II/III and III a/b linked with sleep-disordered breathing

For years, families have recognized sleeping disorders are manifestations of Mucolipidosis (ML) II, II/III and III a/b. Still, there have been limited studies conducted and limited objective data. A recent longitudinal study out of Paris, France has now provided new insights around sleep-disordered breathing. Patients of the Lysosomal Disease Center of Neckar Hospital were studied … Continued

Million Dollar Bike Ride

DOUBLE your donation for research! All donations up to $30K will be matched dollar for dollar for our June 13th virtual event.

Help us Raise $45,000 for our Families

Help us Raise $45,000 for International MPS Awareness Day! Join the National MPS Society as we approach International MPS Awareness Day – May 15, 2020. This year, as we celebrate 45 years of serving families, we hope to raise $45,000 in 45 days for our Family Support programs. These programs provide access to critical resources … Continued

2020 Events

We have events on each coast and in between to raise money to support families diagnosed with MPS and ML, please join us at a few!

2019 Annual General Membership Meeting

The National MPS Society hosts an Annual General Membership meeting to provide updates and report back to our membership. We are here to support you! This took place via webinar on Tuesday, November 19, 2019. Click the link below to review the webinar and learn about the work of the Society over the past year.